Developing a Lived Experience Advisory Council in an Academic Early Intervention for Psychosis Clinic

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by Katherine Eisen2 views·Updated Mar 11, 2021
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  1. Hi, I'm Katie is in a psychologist with the Inspired
  2. Clinic at Stanford University School of Medicine.
  3. Today I'll be talking about lessons we've learned in developing
  4. our clinic Stakeholder Advisory Council.
  5. This presentation was developed collaboratively with members of the Inspire
  6. Clinic and members of the Stakeholder Advisory Council.
  7. A stakeholder advisory council is a group of individuals with
  8. lived experience who advise healthcare Providers on aspects of receiving
  9. care are conducting research.
  10. From the perspective of this patient.
  11. Advisory councils play an important role in supporting partnership between
  12. individuals receiving care and services, providing care.
  13. They help to ensure that the care being provided as
  14. recovery oriented and persons center, which is especially important in
  15. the mental health field.
  16. Given the history of marginalisation of individuals with mental illness,
  17. the Inspire Clinic is an early intervention for psychosis Clinic
  18. in an academic medical center.
  19. Our council began in 2019 and currently has four patients
  20. and three family members who advise on research and clinical
  21. activities. When we were developing our stakeholder council, we spent
  22. time researching existing models and came away with a few
  23. key points to consider when developing an advisory council.
  24. First of all Council members should be paid for our
  25. time. This is both common courtesy and an important acknowledgment
  26. of the valuable role that stakeholders play in advising the
  27. clinic. It's also important to assure that facilitators protect time
  28. to support the council.
  29. Time is needed to prepare an agenda, take minutes, share
  30. feedback and, most importantly, to implement suggestions.
  31. Ideally, council members should represent the diversity of individuals your
  32. team serves.
  33. It's important to acknowledge and address role in boundary issues
  34. that may occur if council members also interact with staff
  35. facilitators in different roles as patient provider outside of the
  36. council meetings.
  37. Also, communication is key.
  38. It's important that clinic staff understand the role of the
  39. Council and important that stakeholders know how the feedback they
  40. provide is being implemented.
  41. We believe that celebrating success is essential every six months.
  42. We invite the Stakeholder Council to our clinic staff meetings,
  43. both to support communication and to celebrate successes.
  44. Our stakeholder council has provided invaluable feedback to our clinic.
  45. Activities have included a full overhaul of our website to
  46. make it less academic and more user friendly development of
  47. a tip sheet for patients using telehealth for the first
  48. time. Also, our Council has engaged in advocacy and has
  49. helped us problem solve issues such as how to engage
  50. family more and how to reduce therapy, weightless times, our
  51. goals for the future.
  52. To ensure that we continue to have the resources to
  53. sustain and grow our stakeholder council and to gradually shift
  54. more leadership responsibility to council members themselves.
  55. We also hope to develop tool kits and resources for
  56. other academic mental health clinics wishing to develop their own
  57. advisory councils.