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The Challenges and Barriers of Tourette's Syndrome
Transcript of The Challenges and Barriers of Tourette's Syndrome
What are some social barriers that a person with TS might face and how do you think it affects their everyday life?
As a person without Tourette's, what do you think you can do to make the life of a TS sufferer a bit easier? by Danika Applin The Challenges and Barriers of Tourette's Syndrome •Tourette’s Syndrome is a behavioral disorder for which there is no known cause (Meyers 1998)
•A person with TS suffers from motor and vocal tics as well as other associated disorders (ex. OCD, ADD, ADHD, etc.) (Scheve)
• Motor and vocal tics are episodes of uncontrollable muscle movement or repetitive spoken outbursts which can be made worse by stress (Scheve)
•Uncontrollable muscle movement can be presented as a small twitch or a large involuntary spasm which can cause bodily harm to the person with TS (Kushner 1999)
•Repetitive spoken outbursts can consist of a noise, word or phrase (Hendren 2002)
•Tics are difficult to control and therefore isolate the person with TS because people don’t understand the cause behind the person’s outbursts (Hendren 2002)
•Associated disorders are almost always present and make social situations very difficult for TS sufferers (Singer 2000) •There is no known cause of TS
•One particular study suggests the size of the person`s corpus callosum correlates with the severity of their TS (severity of the person`s TS was judged based on the severity of their tics) (Plessen et. Al. 2004)
•The study showed that children with TS often had a smaller than normal corpus callosum while adults with TS had a corpus callosum that is larger than normal (Plessen et. Al. 2004)
•This leads us to draw the conclusion that the severity of an individual`s TS has to do with the way the two hemispheres communicate with each other due to the size of the corpus callosum (Plessen et. Al. 2004) •There are a variety of available treatments for TS, all of which were developed to help ease (but not cure) symptoms (Marsh. et. Al. 2009)
•Tic suppression therapy is a type of therapy that patients undergo to help them learn how to hold back their tics for a period of time (Marsh. et. Al. 2009)
•Tic suppression is difficult for patients to learn and does not work for everyone (Marsh. et. Al. 2009)
•Other treatment methods include medication and therapy for any associated disorders (Dubey et. Al. 2003) •“Attention deficit hyperactivity disorder (ADHD), poor impulse control, behavioral outbursts, and obsessive compulsive disorder (OCD) also co-occur with the syndrome, which further complicates the lives of those affected” (Shaw et. Al. 2007)
•“One hundred-fourteen of the respondents [with Tourette’s] were over the age of 19 and were not in school. Of those 114 respondents, 36% had full-time employment, 14% had part-time employment, and 48% were unemployed.” (Hendren 2002)
• “ Prevalence rate of ADHD was found to be 48.8% among students with TS compared to 4.2% among the general population, and those students also are less responsive to stimulant medication” (Shaw et. Al. 2007) Do you find it difficult to suppress a sneeze or a yawn? What is the corpus callosum and what is its purpose? Tourette’s Syndrome is a disorder that creates many challenging barriers for people that suffer with it. People with Tourette's Syndrome suffer from a compromised education. Their tics make it difficult for them to learn in a regular classroom setting. Children with TS find it more difficult to socialize with others because people don't understand that tics are difficult to control. A compromised education and lack of socialization lead to poor employability for those that suffer with Tourette's.