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Stree on the Family of Autism

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by

Na Wu

on 2 October 2014

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Transcript of Stree on the Family of Autism

1. ASD occurs approximately 1 in every 110 children and is growing at a rate of 10% to 17% per year.

2. ASD is considered by many to be the most severe childhood behavioral disorder with the most complex developmental pattern. Many individuals with ASD have limited verbal communication, deficits in social behavior, aggressive behavior, and etc.

3. A child with autism is a severe stressor on the family for many reasons, including the ambiguity of diagnosis, the severity and duration of the disorder, and the child’s lack of adherence to social norms.

4. Parents who have a child with ASD report higher
levels of stress than parents of children without
ASD.

4. Many individuals with ASD may be expected to have an impact on members of both the immediate and extended family.
None of the parents knew that their child had autism during the first year; the earliest diagnosis occurred at 18 months. However, all parents began questioning their child’s disposition when unusual behaviors and developmental patterns began to occur.

One symptom that was especially disturbing for parents was their child’s inability to respond when they spoke his/her name.
Development
Throughout the process of searching for solutions to their child’s problems, parents became effective researchers and advocates.

In the hope of aiding their child, parents attempted many different treatments. Every couple reported implementing at least two different treatments with a maximum of 12.

The most frequently used treatment was speech therapy.
Solutions
Some parents coped by relying on service providers and family support, while some other coped by invoking their religious faith, or other emotion-focused strategies.

It was found that the use of active coping strategies , such as remaining optimistic and maintaining family integration reduced their level of stress.

Parents and families who use a variety of active coping strategies not only experience decreased levels of stress, but also enjoy the benefit of increased family cohesiveness.
Coping Srategies
What do you know about ASD?
What challenges do families experience?
What are some coping and support strategies?
Southern Methodist University
Na Wu

Challenges on the Families of Autism
Some Facts
Questioning
These parents worried about noticeable development regression and odd behaviors that began to occur on a regular basis.

During the period of confusion, parents often seek help from their pediatrician.

The first suggestion that their child may have autism was the most difficult information to receive for parents.
Devastation
Every parent viewed the discovery that his or her child has autism as a life-altering event. . All of the families experienced despair, sadness, denial, and confusion after this finding.

Every couple discovered that having a child with autism greatly altered their support networks.

Parents experienced the loss of support and personal struggles.
Growth
Despite the negative effects of raising the child of autism, there are also positive effects of it.

Life-changing experiences described by parents fell into four categories: personal improvement, friendships, strengthening of the family, and love of their child.
Support Strategies
Social Support
Respite Care
Formal Supports
Reference
Matthew, J.A., Kluge, S.V. (2009). Searching for acceptance: Challenges encountered while raising a child with autism.
Journal of Intellectual & Developmental Disability
,
34
(2), 142-152.

Meadan, H. (2010). Families with children who have Autism Spectrum Disorders: Stress and support.
Council for Exceptional Children
.
77
(1), 7-36.

n.d. (2014). Coping with autism: Stress on families. Retrieved from http://www.child-autism-parent-cafe.com/stress-on-families.html
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