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Transcript of NAACCR 2013
From Cancer Patient to Cancer Survivor: Lost in Transition
Start process of template and website development:
late May- late July
Evaluate the pilot
New template design
Commission on Cancer Program Standards Released
CoC Program Standards begin
Using the CCCR to Pre-Populate Treatment Summaries and Care Plans: What We Learned
Cathy Bledsoe & Randi Rycroft
Collect Sample templates
Decide content/ layout of our new template
Develop resource booklet
ARRA grant (2O11-2O13)
Goals of the program:
Develop a way to pre-populate treatment summaries and survivorship care plans (TS/SCPs) with cancer registry data
Demonstrate that it is feasible in oncology practices
4 pilot sites
3-5 plans per site
Purpose: find ways to improve the web-based application and templates
"It made it all so clear. It made it understandable. It's easy to believe after reading it that the cancer is controllable."
Take home message
Pilot data suggests that the Web Plus Survivorship Program is a feasible way to help hospitals in your state meet the 2O15 CoC deadline, and to help patients understand and accept the next phase of their cancer journey!
Cathy Bledsoe, MPH(c)
Randi Rycroft, MSPH, CTR
Build web-based program
3-4 months of testing
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ARRA funding through the Office of the Secretary Contract Number 2OO-2OO8-27957
Pilot sites: 4
Nurses interviewed: 6
17 plans developed
9 patients surveyed
Piloting the program
Did oncology nurses like it?
Ease of Use- 8.8
Usefulness - 8.O
Document reviews showed minimal changes
Most recommendations were related to the templates, not the application
Provider profile function
Family history info is accessible
Time to develop is highly variable
Multiple cancers/ recurrence is a concern
What we learned
Did patients like it?
How NEW was the information?
How HELPFUL was the information?
How well did you UNDERSTAND?
How SATISFIED were you?
Increased understanding of future care needs
Most felt prompted to make healthy behavior changes
What we learned
Information not new, but helpful
1OO% would recommend
Timing of delivery and having a written record were important themes
Different methods produce different data!
More psychosocial resources
Want info explained
Recurrence was a strong theme in both
Patient-friendly language, formatting
Send to CDC in September
CDC/ ICF Macro
Jeff Scott/ Paul Turtle