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Research - Long Hei
1 in 700-900 babies born worldwide will have Down syndrome
Each year approximately 3,000 to 5,000 children are born with this chromosome disorder
The risk of having a baby with Down syndrome increases with age, from a 1 in 1500 chance for mothers aged 20-24, to a 1 in 184 chance for women 40 and over.
Australia has lower incidence of Down syndrome cases due to high termination rates
1 in 1,100 compared to 1 in 700
Despite a growing trend towards women having children later in life, the annual rate of Down syndrome births in Australia is remaining fairly constant due to advances in prenatal screening.
Early intervention funding is funding for services such as;
Since 1 July 2011, children who are aged under 6 years and have been diagnosed with Down syndrome, have been able to register for access to early intervention funding of up to $12,000 (up to a maximum of $6,000 per financial year) under the Australian Government’s Better Start for Children with Disability (Better Start) initiative.
In 2010 there were 1,373 people with Down syndrome living in Western Australia.
As 10% of the Australian population reside in WA the population of people with Down syndrome in Australia is over 13,000.
In 2010 the total population of people in Western Australia was 2,352,215,
Therefore the overall population rate of people with Down syndrome is approximately 1:1,700
This means the population of people in Australia with Down Syndrome is growing!
1:1700 --> 1:1100
35% of the child’s Better Start funding could be used to buy resources that the child’s Better Start service provider has recommended. (Spending up to $2100 on resources in any one financial year, up to $4200 in total.)
People living in an outer regional or remote area, are able to get a one-off payment of $2000. The additional money can help with expenses such as travel and home visits
While government funding of Down syndrome research has increased by 43% since 2006, Down syndrome research continues to be underfunded on a proportionate basis when compared to other areas of medical research
More males (54.4%) than females had trisomy 21.
For every 10,000 babies born during 2002-2003, 11 had Down syndrome.
A large proportion (63.6%) of women with trisomy 21 affected pregnancies had
fetal deaths or early terminations of pregnancy.
Australian Institute of Health and Welfare (AIHW) reported that chromosomal abnormalities such as Down Syndrome are the second most commonly reported congenital anomalies. (In 2002-2003)