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By:Kyanah Hughes
this is a disease
3 year old with human statue syndrome
1800s, there have been references in medicine describing people who apparently "turned to stone"; some of these cases may be attributable to FOP.
The best known FOP case is that of Harry Eastlack (1933–1973). His condition began to develop at the age of ten, and by the time of his death from pneumonia in November 1973, six days before his 40th birthday, his body had completely ossified, leaving him able to move only his lips.
There have approximately been 700 confirmed cases across the globe from an estimated 2500
First "flare-up" that leads to the formation of FOP bones usually occurs before the age of 10. The bone growth progresses from the top downward, just as bones grow in fetuses. A child with FOP will typically develop bones starting at the neck, then on the shoulders, arms, chest area and finally on the feet. Specifically, FOP involvement is typically seen first in the dorsal, axial, cranial and proximal regions of the body. Later the disease progresses in the ventral, appendicular, caudal and distal regions of the body. However it does not necessarily occur in this order due to injury-caused flare-ups. Often, the tumor-like lumps that characterize the disease appear suddenly.
There is no known cure for FOP. Attempts to surgically remove the bone result in more robust bone growth
She still lives her life no matter what
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, painful and most disabling genetic conditions in which bones form in muscles, tendons, ligaments and other connective tissues.
Google- search engine
http://www.cnn.com/2014/02/05/health/stiff-person-syndrome-irpt/
http://en.wikipedia.org/wiki/Fibrodysplasia_ossificans_progressiva
"I've fallen on the streets and prayed to God that someone wouldn't run over me," says Ingrid Steppan, who was diagnosed with SPS five years ago. "My husband can't touch my arm. My kids can't give me hugs."