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HOW

WHY

WHEn

Prader willi syndrome

Destiny Davis

Prader-Willi (PRAH-dur VIL-e) syndrome is a rare genetic disorder that results in a number of physical, mental and behavioral problems. A key feature of Prader-Willi syndrome is a constant sense of hunger. A genetic disorder that causes obesity, intellectual disability, and shortness in height.

The list of symptoms are Food cravings and weight gain, underdeveloped sex organs, poor growth and physical development, impairment, and deylayed motor development.

The diagnosis is confirmed by a blood test. The preferred method of testing is a “methylation analysis,” which detects >99% of cases, including all of the major genetic subtypes.

WHAT

the benfits for commuity resoures/technogly resoures

They have some foudations set up for it; The Foundation for Prader-Willi Research, MedlinePlus: Prader-Willi Syndrome, and -Willi Syndrome Association (USA).

The assistive technology can help kids with a processing disorder better understand what they hear. As well as the tools which include listening devices, captions and text-to-speech apps. This baically can help amplify speech to make it clearer.

Diagnosis often is delayed until early childhood because the clinical findings are relatively nonspecific, particularly in infancy.

IQ

Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races.

Treatments that can help ?

A dietitian can help you develop a healthy, reduced-calorie diet to help manage your child's weight while ensuring proper nutrition. A restricted-calorie diet may require supplemental vitamins or minerals to ensure balanced nutrition. Increasing physical activity and exercise can help manage weight and improve physical functioning. Your child will likely benefit from a range of therapies, including physical therapy to improve movement skills and strength, speech therapy to improve verbal skills

IDEAS

2 health and wellness tips

2 health and wellness tips

Managing hormone levels and weight can improve development and behavior and prevent complications. Increasing physical activity and exercise can help manage weight and improve physical functioning.

resources

https://www.mayoclinic.org/diseases-conditions/prader-willi-syndrome/symptoms-causes/syc-20355997

https://gompers.org/understanding-assistive-technology-and-its-benefits-on-people-with-disabilities/

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