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10/06 Make Up Assignment_Amna Alam
1
Amna Alam
October 6, 2022
SSMV
Henrietta Lacks 2010s
2010
Henrietta Lacks Family Foundation
2010
Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, opens a scholarship fund for the descendants of Henrietta Lacks after publishing her book.
"Provide Assistance to individuals and their families who have been directly impacted by such research"
Purpose
- http://henriettalacksfoundation.org/
The Foundation runs on grant basis that is given based on applications. Claims to have granted ninety aids to 30 "qualifying" members of the Lacks family
Henrietta Lacks Memorial Lecture Series
Johns Hopkins
Established by the Johns Hopkins Institute for Clinical and Translational Research in order to reconginze and honor Henrietta and the Lacks' family contirbutions to the global scientific and medical community. (October 2, 2010)
2013
The HeLa Genome Data Use Agreement
2013
- The National Insitute Releases a statement cliaming they have reached an understnading with the Lacks family
- Researchers who are approved will only be able to access the HeLa genome for further research
Implications
- NIH board including 2 Lacks family members to approve researchers' requests
- Lacks family will be recognized in every publication involving HeLA
- No restrictions/regulations on commerical use of HeLa cells or Lacks family genome
2017
The Immortal Life of Henrietta Lacks
2017
HBO releases a movie based off of Rebecca Skloot's novel, starring Oprah Winfrey as Debroah Lacks and Rose Bryne as Skloot.
Lawrence Lacks
Lacks Family Response
- Henrietta Lacks' eldest son expressed his dismay at the production of this movie.
"It’s bad enough Johns Hopkins took advantage of us, now Oprah, Rebecca, and HBO are doing the same thing. They’re no better than the people they say they hate." March Press 2017
- "Dissapointed" Opray Winfrey by demanding that each actor donate $10 million to the Henrietta Lacks Family Foundation which he argued should be transferred to himself
Deborah Lacks dies in 2009
Deborah's Death
Publication of Rebecca Skloot's novel or the production of HBO's movie was not approved by the main charecter of each media, Deborah Lacks.
This is similar treatment to Henrietta Lacks as neither mother nor daughter provided consent to the releasage of their personal stories.
Profits
No profit from this film has been reported to have gone to the Lacks family or the foundation
2018
Henrietta Lacks Building
2018
John Hopkins announces the creation of a multidisplinary building on campus named after Henrietta Lacks that will support minoirty efforts
2022 Building Updates
2022 Update
Hopkins releases a statement that local and minoirty owned buissnesses will facilaite the design and construction of the new building set to open in 2025. (February 24, 2022)
Lacks Family Lawsuit
2022
Lawrence Lacks leads the efforts with Attorneys Ben Crump and Christopher Seeger to pursue a lawsuit against Thermo Fisher Scientific, a global company with a market cap of over $200 billion.
The court has decided to give its decsion at a later date.
TFS' Argument
The defendant's lawyers argue that Maryland's law for statue of limitations expired three years after Rebecca Skloot's book was released.
Attorney's Arguments
The attorney's argue that the statue of limitations restarts each time a HeLa cell is replicated
Anlaysis of Responses
Many responses to the unveiling of the atrocities that occured towards Henrietta Lacks and the exploitation that the Lacks family continues to experience to this day are bad and misguided. First, the National Institutue of Health's "understanding" with the Lacks family on their genome research was lacking in the sense that they did not include regulations on commerical benefit of multibillion dollar companies that continue to exploit medical malpractice. Second, HBO and Oprah Winfrey's decision to support and produce the movie based on Skloot's book was misguided. While they might have had good intentions by deleivering the story in a different way to be more accesible to a bigger audience and including Lacks family members on the creation of the movie, it was just another way Henrietta and her family are continued to be exploited. Deborah died before she could even read the draft of both the movie and the book. Based on how Skloot and the movie creators treated Deborah, it is very difficult to find differences between Deborah's exploitation and her mother, Henrietta's, decades earlier.