Introducing 

Prezi AI.

Your new presentation assistant.

Refine, enhance, and tailor your content, source relevant images, and edit visuals quicker than ever before.

Loading…
Transcript

Prayer for Rett Syndrome

How Rett Syndrome Relates to Me

Rett Syndrome

Resources

Online Resources

https://www.girlpower2cure.org/get-help/family-support/

https://www.rettsyndrome.org/for-families

http://www.childrenshospital.org/centers-and-services/rett-syndrome-program/resources-for-families

https://www.helpmegrowfl.org/information-families/developmental-concerns-and-disabilities/retts-syndrome/

https://rarediseases.org/organizations/international-rett-syndrome-foundation/

This disorder effects many girls who will

one day become woman. The more that we know

about this disorder the more we can do to assist

those who suffer from the many side effects.Knowing

that there are support and resources to help parents

is very important. Also, having faith to

understand that god has reason for everything,

and he will not put more on you than

you can bare. We serve am almighty

savor who sees and knows all.

Articles

By: Theresa D. Anderson

Walker, E. M., Crawford, F., & Leonard, H. (2014). Community participation: Conversations with parent-carers of young women with Rett syndrome.

Journal Of Intellectual & Developmental Disability, 39(3), 243-252. doi:10.3109/13668250.2014.909919

Cianfaglione, R., Clarke, A., Kerr, M., Hastings, R. P., Oliver, C., & Felce, D. (2016). Ageing in Rett syndrome. Journal Of Intellectual Disability Research, 60(2), 182-190. doi:10.1111/jir.12228

#Rett Sydrome

http://www.blogtalkradio.com/shad315/2011/09/20/the-power-of-god-in-rett-syndrome-hope-and-healing

Family Resources

Laws

https://www.girlpower2cure.org/get-help/family-support/

Family Support & Resources

FAPE- Every student, no matter their disability are able to

receive a free and appropriate education.

https://www.rettsyndrome.org/for-families

Trusted information, family support, and research program

http://www.childrenshospital.org/centers-and-services/rett-syndrome-program/resources-for-families

2015-Senate bill 117 designated October as National Rett Syndrome Awareness month.

Family and community support and resources

https://www.helpmegrowfl.org/information-families/developmental-concerns-and-disabilities/retts-syndrome/

2015- Rett Syndrome research was deemed a eligible

condition for research by the department of Defense.

Rett Syndrome definition & Symptom Information

https://rarediseases.org/organizations/international-rett-syndrome-foundation/

National Resources and Syndrome Information

Symptoms

Rett Syndrome

What is Rett Syndrome?

By: Theresa D. Anderson

Aids & Services

medicalhomeportal.org

  • Definition of Rett Syndrome
  • How is it diagnosed?
  • What causes it?
  • Sypmtoms
  • Does not make conversation.
  • Has a problem with learning and reasoning (intelligence).
  • Cannot control the use of hands.
  • Repeats the same hand gestures including hand washing, hand wringing and hand clasping, and puts her hands in the mouth often.
  • Head doesn’t seem to grow as fast as the rest of the body.
  • Your child shakes — in the legs, the body or both — and more often when your child is upset or bothered.
  • Walks funny — either stiffly, on tiptoes or with feet spread wide apart.

Mychildwithoutlimits.org

  • Provides Resources
  • Montly Newsletter
  • Caregiver Notebook
  • Community Blog
Learn more about creating dynamic, engaging presentations with Prezi