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How Rett Syndrome Relates to Me
Online Resources
https://www.girlpower2cure.org/get-help/family-support/
https://www.rettsyndrome.org/for-families
http://www.childrenshospital.org/centers-and-services/rett-syndrome-program/resources-for-families
https://www.helpmegrowfl.org/information-families/developmental-concerns-and-disabilities/retts-syndrome/
https://rarediseases.org/organizations/international-rett-syndrome-foundation/
This disorder effects many girls who will
one day become woman. The more that we know
about this disorder the more we can do to assist
those who suffer from the many side effects.Knowing
that there are support and resources to help parents
is very important. Also, having faith to
understand that god has reason for everything,
and he will not put more on you than
you can bare. We serve am almighty
savor who sees and knows all.
Articles
Walker, E. M., Crawford, F., & Leonard, H. (2014). Community participation: Conversations with parent-carers of young women with Rett syndrome.
Journal Of Intellectual & Developmental Disability, 39(3), 243-252. doi:10.3109/13668250.2014.909919
Cianfaglione, R., Clarke, A., Kerr, M., Hastings, R. P., Oliver, C., & Felce, D. (2016). Ageing in Rett syndrome. Journal Of Intellectual Disability Research, 60(2), 182-190. doi:10.1111/jir.12228
Family Support & Resources
FAPE- Every student, no matter their disability are able to
receive a free and appropriate education.
Trusted information, family support, and research program
Family and community support and resources
Rett Syndrome definition & Symptom Information
National Resources and Syndrome Information
Symptoms
By: Theresa D. Anderson