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The Sibling Subsystem

The Extended Family Subsystem

What is the Extended Family Subsystem?

What is the Sibling Subsystem?

The extended family subsystem is those interactions that occur between members of the immediate family, relatives, and others who may be regarded as family.

The sibling subystem is the interactions between brothers and sisters.

The Extended Family Subsystem Includes:

Aunts & Uncles

Cousins

Grandparents

Adoptive Parents

Close Family Friends

Siblings of children with disabilities often take on many roles such as:

Companion

Teacher

Caregiver

What Is the Impact?

Types Of Assistance Provided by Extended Family:

Extended family provides mostly financial, emotional, and instrumental (babysitting, completing household chores) supports.

Resources

Family Subsystems

The impact of having a brother or sister with a disability can depend on many factors, such as:

This video is the perfect representation of the sibling subsystem and how powerful the relationship between brothers and sisters can be.

Grandparents are more likely to provide emotional supports rather than instrumental supports

Adjustments

When raising a child with special needs, parents are able to better adjust to the increased demands when higher levels of support are given by grandparents

Turnbull, A. (2011). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust (6th ed.). Upper Saddle River, N.J.: Pearson.

Size of Family

Birth Order

Studies show that maternal grandparents are more supportive than paternal grandparents

Grandparent's Views Of Disabilities:

Gender

by Molly Weglin

Grandparents often have traditional views about disabilities and can attribute the cause of disabilities to:

  • Spirituality-praying/bargaining will cure a disability
  • Genetics-a disability is a result of negligence during pregnancy or birth
  • Discipline-stricter discipline will result in ideal behavior

Grandparents As Primary Caregivers:

There are approximately a half-million grandparents that are primary caregivers for their grandchildren. This video show the experience of one such set of grandparents

Nature of Disability or Exceptionality

Family Structures

Extended Family Members

The most common extended family members are grandparents

There can be pros and cons to being a sibling to a child with a disability, though most would regard it to be a neutral experience with both positive and negative aspects.

Pros & Cons

Positive Aspects:

  • Enhanced Maturity
  • Increased Self-Esteem
  • Life Insight
  • High Tolerance
  • Social Competence

The different roles that a grandparent might play differ depending on the culture:

  • Hispanic cultures associate age with authority and will often live together
  • In Indian culture, grandparents are spiritual guides and teachers while uncles provide discipline
  • Eastern European cultures often request little to no input from relatives

Negative Aspects:

  • Embarrassment
  • Guilt
  • Resentment
  • Too Much Responsibility
  • Pressure to Achieve

THANK YOU!

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