Fetal Cardiology
Educational Resources for Families
Conclusion
Follow-Up (1-2 wks post echo)
Early Comprehensive Support
- Early resource support
- Early interventions
- Connect where we can
1. Nurse Coordinator Phone Call
2. Social Worker Phone Call
3. Sub-specialists/Resource Phone Calls
4. Engage research
Questions?
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Follow-Up Echo
1. Repeat counseling
2. Nurse coordinator check-in
3. Sub-specialists appointments
a. Cardiothoracic surgeon
b. Single Ventricle nurse coordinator
c. Social Worker (if indicated)
d. Cardiovascular genetics
e. CICU attending
f. CICU tour
g. CCHMC Delivery unit tour (if indicated)
Resources We Use:
Diagnosis Education
Introduction (Visit 1)
Family Support/Education
1. Heart Encyclopedia – Includes video models
2. Centers for Disease Control and Prevention
3. National Institutes of Health
4. Congenital Heart Public Health Consortium
5. American Academy of Pediatrics
6. American College of Cardiology
7. American Heart Association
1. Diagnosis and Counseling
1. Heart Institute Patient-Family Advisory Council (HI-PFAC)
2. Sisters by Heart
3. Conquering CHD/Pediatric Congenital Heart Association (PCHA)
4. Little Hearts Inc.
5. Regional groups
a. Mended Little Hearts
b. PCHA
2. Education Folder
3. Newborn Kit
4. Heartpedia Application
5. Well-Being Questionnaire
I have no financial relationship with any manufacturer of any commercial product and/or provider of commercial services discussed in the conference. I do not intend to discuss and unapproved/investigative use of a commercial product or device in my presentation.