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Transcript

Patient Resources

Personal Care

Emergency Preparedness

In & Out

of the Home

Exercise,

Recreation,

& Travel

  • How to make an emergency plan
  • Resources
  • Useful emergency Items
  • Emergency kits
  • Falls
  • Mobility Roadside Assistance
  • Lift Systems, Transfers, & Ramps
  • Bathing
  • Toileting
  • Dressing
  • Eating & Drinking
  • Moving Independently
  • Braces, walkers, canes,

wheelchairs, etc.

  • Falls
  • Transfers

Adaptive equipment to use inside and outside the house.

  • General use
  • Kitchen
  • Bathroom
  • Bedroom
  • Living Area
  • Office/School
  • Technology
  • Getting Out & About
  • Lift Systems, Transfers, & Ramps
  • Home Renovations

This is a list of adaptive equipment to help you with exercise and continue your hobbies. There is also resources on accessible travel.

  • Exercise & Recreation
  • Accessible Travel

Please click here to view the Emergency Preparedness Presentation:

Please click here to view the In & Out of the Home Presentation:

Please click here to view the Exercise, Recreation, & Travel Presentation:

Please click here to view the Personal Care Presentation:

https://prezi.com/view/dqotoBZTvmFnx0028hH8/

https://prezi.com/view/LaoIrUgZxNiAuGUXsvt6/

https://prezi.com/view/WlB7BU3F0UR3dgKIw9Rm/

https://prezi.com/view/PtBQoSnBgEQGebuIpg2s/

Intro &

Disclaimer

Practical Tips, Devices and Gadgets to Help Make Life with Neuromuscular Disease Easier

Overview

  • An introduction to assistive & adaptive equipment, implements & gadgets

  • Learn about the various devices and options available to you when choosing a suitable equipment

  • Hear & see demo of the use of some functional/practical equipment

  • Participate and share a piece of equipment that you find helpful

Disclaimers

Disclaimer

  • Content provided on this presentation, including information that may be provided directly or by linking to a third-party website is provided for informational purposes only and does not constitute endorsement by NDF or its affiliates of any websites or specific products.
  • THIS PATIENT RESOURCE PRESENTATION AND DOWNLOAD-ABLE DOCUMENT DO NOT PROVIDE MEDICAL ADVICE: The information, including but not limited to, text, graphics, images and other material contained on the presentation and the download-able document are for informational purposes only. The material is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on the presentation or the download-able document.

How to Use this Resource

How To Use This Resource

  • You do not have to follow the order of the presentation - go wherever YOU want!

  • All the items here do not have to belong in ONE room; they are interchangeable and adaptable.

  • All items in this presentation are used by someone in the neuromuscualr disease community unless otherwise noted.

Key Takeaways

  • There are many adaptive devices options available for us with a muscle disease
  • We need to try out and investigate the ones which would work for individual unique ability
  • Technology is expanding at a rapid speed which benefits us and many more appropriate devices are constantly coming on the market
  • Always keep your safety in mind when choosing devices

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