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What is it?

Symptoms

Real Life Example?

Appear early, usually at birth or infancy

  • High fevers and seizures from high temperature.
  • Intellectual disabilities
  • Weak muscle tone
  • Can’t feel hunger pains

Treatment ?

There is no known cure

Do not always work but .....

There are ways of managing symptoms and preventing injuries and infections:

Research Foundations, Support Groups & Charities

The Neuropathy Association

  • protective eyewear
  • teaching the child to associate blood with an injury, and to find help right away even if it doesn't hurt
  • moving to cooler climates so they don't have to worry about overheating
  • extreme childproofing of everything in the house

National Organization for Rare Disorders

Interesting Facts

My Child

  • most babies with this condition don't live past the age of 3, mostly because of overheating
  • those who do, usually don't make it past 25

Congenital Insensitivity to Pain Syndrome (congenital analgesia)

By: Sara Najeeb

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