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Exploring Online Advocacy for Childbearing women:

Web 2.0 and participatory maternity care

Amy Romano, MSN, CNM

Digital Pharma East

October 19, 2010

Do c-sections cause endometriosis?

1st comment...

...Those of us active in ICAN (International Cesarean Awareness Network) have known about incisional endometriosis for years….many of us suffer from it to varying degrees...Even though my knowledge is “anecdotal” (and thus suspect) that this is a problem that doesn’t seem very unusual or rare at all.

Gretchen Humphries

Advocacy Director, ICAN

advocacy@ican-online.org

http://ican-online.org

2nd comment...

In the THread of One Blog Post:

(referring to a friend who had a c-section for intrapartum abruption)

But the really sad thing was that when she was ready to conceive baby #2 (and then #3), well of course she had to go off the birth control. And have sex when she was in intense pain. She said that it was hard for her husband to even do his part…because its not like having your wife fighting back tears is particularly “arousing.”

  • dissemination of research findings
  • social support
  • discussion of diagnostic and treatment options
  • qualitative data on the quality of life impact of both the disease and the various treatment options
  • musings about appropriate measures to determine causality, impact, and treatments
  • hope for those who had lost or were losing it
  • empowerment

4th comment...

"Over the next 2 years the pain increased during my cycle to having extreme pain on slightly bumping my abdomen, bending, stretching, shooting/pinching pain…really just any use of my abdomen during my cycle...

24th comment...

9th comment...

A response...

7th comment...

"Wow I was just sitting here thinking “I wonder if my c-section could have caused my endo” and so I googled it, and there was this discussion"

...Could I get some feedback on how successful surgery has been for others with this same problem?"

"i’m glad i stumbled upon this website. i’m convinced now i need to make an appointment with a general surgeon and plead my case..."

"I have 6 studies that looked at recurrence rates. All together, they comprise 101 cases of surgically treated post-cesarean endometriosis, and 5 women had a recurrence (5%)...."

(from a nurse about to undergo surgery to confirm and treat cesarean scar endometriosis)

"Even as a nurse, I had no idea what “late effects” these c-sections could have on me. I DEFINATELY think more research should be done. It would not surprize me at all if the incidence of scar endometrioma increases as more and more women today undergo c-sections as compared to many years ago."

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