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WMDD Training

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Adriana Estrada

on 12 September 2018

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Transcript of WMDD Training

For patients diagnosed with leukemia, lymphoma and other life-threatening diseases, a marrow transplant may be their only hope for a cure.

70%
of patients who need a transplant to do not have a matching donor in their family.

They depend on Be The Match® and our supporters to find a match to save their life. Lets review the history of Be The Match
The Need
Only 50% of patients receive the transplant they need to save their life

Some patients find a match but the donor declines.

For some a match is never found

Others learn that transplant is no longer a treatment option for them.

Committed Donors Only
Younger Donors are Needed
Doctors request younger donors 90% of the time
• Younger donors provide the best chance for transplant success.

• Younger donors provide higher volume of bone marrow and stem cells.

• Registry Guidelines:
– Be between the ages of
18 and 44 (45 &up there is tax deductible fee for processing)

The Need For Diversity
Minority donors currently represent only 39% of the Be the Match the Registry.
What Happens Now?
You've registered, swabbed
and the phone rings!
You're a Potential Match!
Finding A Match Is HARD.

A patient’s body will only accept marrow or stem cells that closely matches the patient.
Highly specialized testing is performed to determine compatibility between a donor and patient.

1 in every 420 that join will be a match


How to Help
1. Educate/ Commit Potential Donor
2. Walk Through
Digital Registration
Step 1: Educate
• Tell potential donors that they can help patients in need of a transplant
– For some, it may be their only hope for a cure
– For Leukemia, Lymphoma, Sickle Cell Anemia and other patients with a blood disease -their body no longer produces blood cells the way it should

Once matched, doctors would rid the patient's body of cancer and take out their immune system with high doses of chemotherapy and radiation. They then recieve the donated cells to build a new working blood system. The cells wont realize they are in the wrong body and will replace the defeated blood system. Most donors say stem cell donation feels like donating blood and marrow donation feels like doing squats. Most patients in need of a marrow donation are children or those suffering from aggressive cancers of the blood.



Completeing the Registration Form

The potential donor will be asked to create an account. This is where they can log in anytime to see the status of their swab kit and change/update information as needed during their time on the registry.
They will need to verify their account by checking their email. The email will instruct them to log in.
"If you can't see the good, MAKE the good!" -Rowan Windham

Start Time: 10:00 AM

End Time: 4:00 PM

Dress: Comfortable, breathable outdoor clothes, Tennis shoes.

Please remember to wear sunscreen!

Welcome to the Cancer Advocacy Movement!
Questions?

Adriana Estrada
adriana.estrada@gencure.org
210.857.5990
3. Show how to swab and remind potential donor they are not added till they recieve/return the kit!
The Cheek Swab- At Home

Collecting cheek cells with swab kit
– One swab per inner cheek
– Swallow before each swab
– Back and forth movement for 10 seconds

Place swab in holder (no specific order)
No One Fights Alone!

Tag yourself at your HEB to let friends and family
know where they can get educated and registered!

Use #Connectforlife #WMDD2018 #THANKYOUDONOR

Send photos to angelica.sandoval@gencure.org

Take photo or video
horizontally not vertically

Always have
3 or more
non-employees people in a photo. Employees can be photographed alone.



From Our Team and Our Patients -- Thank you!!!
Our Registry, Our Responsibility

You've Probably Got a Few Questions
Am I Eligible to Join the Registry?
Does It Hurt? Are There Any Risks?
How To Save A Life- Progression Bar
Take out your phone and go to join.bethematch.org/cure44
-Goal: 13 new registered donors per store
-Raise awareness for organ, tissue and cornea donation
-Invite the community to write thank you cards to donors

Who Are We?
This World Marrow Donor Day, we would like to celebrate the donors who said yes to saving a life!

GenCure Community Engagement Results:
Second highest in nation for Hispanic donor search requests
More then 1,200 donations of marrow and peripheral blood stem cells (PBSC) for patients in 44 countries; 30% of donations are for pediatric patients. On Sept. 15th our awareness efforts will make these numbers grow!



Step 2: Registration- ONLINE
Our Mission on WWMD:
Raise awareness about the need: There are thousands of patients hoping for their cure.

Thank the undercover heroes if/when they approach you! There are also thousands out there! They each have a story.

Invite the community to join the registry. The power to save patients lives in your voice!

Invite everyone to write a thank you note to all our future donors! We will deliver them as they donate.
To-date,
250,000
members in local donor base; 80% ethnically diverse
60-county service area from Austin to the Rio Grande Valley
Focus on Donor Commitment;
50%
of donors will decline when contacted
https://www.donatelifetexas.org/
We would also like to offer an opportunity for the public to register as organ, tissue and cornea donors.
Are you a donor? Check your ID for the heart! Forms will be available to register if they wish or they can register online.

Organ, Tissue and Cornea Donation
Did you know you can opt in/out of specific donations at any time? For more info visit:
As we invite the community to join the registry as a potential life saving donor, we want to ensure they are
committed.

Our new online platform answers a lot of questions. Lets Review together!
Click the plus signs on the circles to learn more.
What's Donation Like?
Before they begin, if they have any medical concerns, please have them check here:


is celebrated globally on the third Saturday of September in more than 50 countries around the world! Our objective? To celebrate those who gave the gift of life to a stranger and invite others to join our community of registered members spreading awareness and hope.
Your first name, last name and email address will pre-populate from the previous screen
Create a password:
-must be 8 characters long
-contain at least one uppercase and one lowercase letter
-contain at least 1 number
-can not have same words as your email
select a security question from the drop down menu
enter response (must be 4 characters long)
Ethnic Ancestry
When unsure
North American can be chosen
Must choose yes or no for Hispanic

Must select at least one option for ethnic ancestry
Eligibility- the circled "i" will give more info
Active duty military will be rerouted to salutetolife.org/join. Dependents and veterans can join with Be The Match.
Almost Done!
The Power of Social Media- the WORLD is watching!
Blood marrow/stem cells produce your blood system. You never run out. Your body will always make more.
*Note* you can change language here
"We Are All The Bradys"
You may be given a little info about your match such as
Age, Gender & Diagnosis
Then...
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