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ENCR
RL
by
Raquel López González
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Updated Oct 29, 2021
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Chapters
00:00
Chapter 1
00:13
Chapter 2
01:10
Chapter 3
02:12
Chapter 4
03:19
Chapter 5
03:43
Chapter 6
Audio Transcript
Auto-generated
00:01 - 00:03
Good morning. My name is like a little bit.
00:03 - 00:06
I am part of the population based cancer registry of Madrid
00:07 - 00:10
and I'm here to present you the quality indicators of
00:10 - 00:14
the newly established pediatric population based cancer registry of Madrid.
00:14 - 00:16
As you may know,
00:16 - 00:18
there are four aspects usually regarded when
00:18 - 00:20
evaluating the quality of cancer registries,
00:20 - 00:25
comparability, completeness validity and timeliness.
00:25 - 00:29
It is important for cancer registries to analyze the quality of the data regularly.
00:30 - 00:33
But perhaps it is even more important for newly established registries
00:34 - 00:36
that are taking their first steps and pollution data
00:36 - 00:40
as they need to establish their basis on robust, reliable and high quality data.
00:41 - 00:44
The pediatric population-based cancer registry of Madrid
00:44 - 00:48
was created in 2017 and it has focused its
00:48 - 00:53
first efforts on analyzing data for traffic and adolescent cancers
00:53 - 00:56
and it has already validated all tumors diagnosed a month
00:56 - 01:00
2015 and 2017 in people under 20 years old.
01:01 - 01:02
With all of this,
01:02 - 01:06
I was to evaluate the quality of the newly established
01:06 - 01:08
pediatric population based cancer registry
01:08 - 01:10
or graduate through quality indicators.
01:12 - 01:16
A red streak collects information on all malignant tumors except non melanoma,
01:16 - 01:19
skin cancers plus non malignant tumors of the sinus
01:19 - 01:21
and benign and see two of the black.
01:22 - 01:25
We reviewed manually and individually all the
01:25 - 01:27
medical records available in the electronic,
01:27 - 01:28
all clinical history.
01:28 - 01:30
In search of clinical information.
01:32 - 01:33
To analyze the quality of the data,
01:33 - 01:37
we perform an internal coherence analysis to detect
01:37 - 01:42
unlikely or impossible combinations of topographic morphological codes,
01:42 - 01:44
unlikely thomas at certain natives
01:44 - 01:47
and other verifications. Using the iron tools
01:47 - 01:51
with an analyze the quality indicators proposed by the iron
01:51 - 01:52
in their latest report
01:52 - 01:56
and compared ourselves results with the accepted ranges.
01:56 - 02:00
One of these indicators is the proportion of non malignant presence over
02:00 - 02:04
the total number of central nervous system pleasant which we analyzed,
02:04 - 02:06
taking into account the different behaviors of
02:06 - 02:09
the pillow citicasters saitama in the video,
02:09 - 02:11
which changes from malignant, too uncertain.
02:11 - 02:12
In the third edition
02:14 - 02:16
after this process, they were shown,
02:16 - 02:20
the results showed that all the quality indicators were among the accepted rates.
02:21 - 02:23
The proportion of cases eight several years.
02:23 - 02:27
The microscopic microscopically sorry verified cases.
02:27 - 02:32
The cases identified by the death certificate only the unspecified cases and
02:32 - 02:36
the eight standardizes cases were within the range accepted by the I.
02:36 - 02:37
R.
02:38 - 02:41
On the other hand, we also found that the proportion of non malignant
02:41 - 02:42
spasms
02:42 - 02:45
may not be comparable across other registries
02:45 - 02:47
or with earlier published data because the result
02:48 - 02:51
changes quite a lot depending on which cost classification. Use.
02:52 - 02:55
If you take a look at the red marked area in the table at the right,
02:56 - 02:59
you can see that if you consider parasitic as to saitama non malignant,
03:00 - 03:02
the result exceeds the accepted range.
03:02 - 03:05
While if you consider it uncertain admits the standard
03:06 - 03:11
Friendly, there are tools reported 17 warnings about unlikely combinations
03:11 - 03:13
that we reviewed mentally. Again,
03:14 - 03:18
we found them to be correct and we validated them as unusual or rare cancer cases.
03:19 - 03:20
So
03:20 - 03:21
to summer,
03:21 - 03:25
we conclude that the quality indicators of the pediatric population base
03:26 - 03:29
cancer registry of Madrid are similar to those
03:29 - 03:32
provided by other european pediatric cancer registries,
03:32 - 03:36
which suggests that our registry provides data with high validity
03:36 - 03:40
and that the use of internationally recognized and validated tools
03:40 - 03:43
enables the systematic analysis of data quality and its comparison.
03:45 - 03:48
This is all. Thank you very much to the E. N. C. R.
03:48 - 03:50
For the opportunity of presenting this poster in this
03:50 - 03:53
meeting and thank you all for your attention.
03:53 - 03:54
Goodbye.
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