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Sunday Edition (thesis)

Health Status & QOL
by

Nora Fayed

on 12 May 2012

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Transcript of Sunday Edition (thesis)

Concepts affect measurement Health is the interaction between:
Body functions & structures
Activities
Participation (life roles)
Environment
Personal factors Health Rights Culture Resources Sprituality Standards Concerns Goals/
Priorities Choices Expectations Quality of Life The International Classification of Functioning, Disability and Health Ideas focus what to measure
& how to measure Values:
Sharing
Access
Openess
Comparability
Equity What's the problem? We both provided anti-convulsant therapy to the same types of children with the same protocol! ...my QOL results say it
'worked' for my kids ...but my QOL results say it did not 'work'
for our kids What happened? According to Fayed & Kerr, 2008 there are significant
inconsistencies in the content of health status and QOL instruments
in childhood epilepsy: Standard international definitions and terms
provide a basis for demonstrating
consistencies and inconsistencies
in instrument content. Health is the interaction between:
Body functions & structures
Activities
Participation (life roles)
Environment
Personal factors The International Classification of Functioning, Disability and Health Functioning, Disability & Health Are these standard definitions and methods able to make conceptual distinctions between
health versus QOL instruments? QOL CHQ PedsQL KIDSCREEN FDI Part 1:
Method development Part 2:
Method application A. Literature Review B. Method Update C. Method for Children D. Instruments in Child Cancer E. Health Status Instruments F. Generic Instruments Future Directions D. Knowledge Sharing Activities E. Empirical testing Disability Functioning Conclusion Thesis
Committee European
Collaborators Peter Rosenbaum Anne Klassen Olaf Kraus de Camargo Jerome Bickenbach Alarcos Cieza Parminder Raina Elizabeth Kerr McMaster Colleagues Acknowledgements Health status and QOL instruments for kids are: highly variable in content
represent different perspectives
can't be interpreted between studies Content in health status and QOL instruments
Full transcript