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Transcript of Down Syndrome
Shelby Wallace, & Ellen Reid Physical Features AKA Trisomy 21 It affects about 1 in every 700-800 babies born in the United States. a condition in which extra genetic material causes delays in the way a child develops mentally and physically. It is caused by the child receiving an extra chromosome 21, giving them a total of 47 chromosomes instead of 46. A round and flat facial profile Have short stature and short limbs A single crease across the palms of hand Larger than normal tongue Larger than normal space between the big and second toes Small ears and nose Upward slant to the eyes, almond shaped eyes Medical Problems low muscle tone higher risk of infections or even cancer respiratory problems thyroid problems heart defects vision and hearing problems There was a study done with 10 families that showed the experiences of each family that had a child with Down Syndrome that are preschool to school age. "Families who have children with mental disabilities have an additional overload at all levels; social, psychological, financial, and physical." Going through life with a child who has Down Syndrome. "...it was difficult when she was born. When she came it was something new. We didn't even know what Down Syndrome was." (Father 2) The key is to know what to do once you realize that your child has DS: Figuring out what Down Syndrome is, figuring out what kind of help you might need, what the child needs, what the family needs, financial needs, social support, etc. Giving birth to a child with DS is usually "accompanied w/ various feelings such as: impact/shock of the unexpected, surprise, doubt and sorrow." Before and right after birth: Going through life with a child who has Down Syndrome. What kind of Treatment: " the child to develop and overcome his/her own barriers, the family mobilizes and takes up the fight, seeking all kinds of treatments trying to find services and professionals to efficiently care for the child and also seek knowledge to be able to provide stimuli at home." Speech and language therapy
Or any extra treatment that the individual with DS may need Going through life with a child who has Down Syndrome. Seeking support from others: "Parents need help to manage both financial and emotional help."
Parents set aside their own personal desires for child.
"Exchange of experience w/other families reduces doubts due to exchange in resource info., provides comfort and enables contact w/others w/similar experiences." "...We had to pay for everything. But thank God, I have a friend, we say that is a friend, you can count on, that helped me a lot..." (Father 2)
"...if you don't have money, you have to lose your pride, and go ask for help." (Father 5)
"I had a friend who had a child with DS, she offered to come here to my home...told me what I was supposed to do at bath time, told me all the fear would go away..." (Mother 5) Going through life with a child who has Down Syndrome. Independence for the child: "The family lives the entire time concerned with the child's future."
"Seeking the greatest degree of independence and autonomy the child is able to achieve."
The future of a child with DS is unknown so helping them the best you can, while keeping the family together and balancing everything will help everyone in the end, adapting and learning along the way. "...we don't know about tomorrow, we may die tomorrow or sometime after...So, who'll care for him?... And our concern is with tomorrow, how is he going to take care of himself if he doesn't have his father and mother anymore, so we try to do whatever we can do for him." (Father 3) Set aside time for frequent review practice of tasks Have high expectations for the student. Be enthusiastic and encouraging. Model the tasks and give the students many opportunities to perform it. Break down tasks into smaller sequence steps Allow the student adequate response time Be flexible with attaining educational goals Give clear signals about the end of one activity and beginning of the next Seat student away from distractions Use concrete objectives/manipulative along with verbal explanations