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Progeria Syndrome) or Progeria. What is Progeria? Children with Progeria generally appear normal at birth,
it’s not until they are about 12 months old that signs of Progeria begin to show. Only one baby in every 4-8 million are born with progeria. According to Hayley Okines' page there are only 74 known cases of Progeria around the world. both boys and girls are infected. What causes Progeria? Progeria is caused by a mutation in the gene called LMNA. This gene produces lamin A protein that holds the nucleous of a cell together. Therefore it is NOT preventable. Hayley Okines
Hayley Okines still goes through school, even though she has progeria. She has dified the odds of death twice. She is now 15 and still going to school like any other teenager.
She does have her stuggles with bulling about her illness but alot of people at her school are understanding. Every photo of Hayley taken at her school she is smiling with her friends. Sources Bates, C. (2010, June 15). School girl, 12, with body of a 96-year-old refuses to be beaten by aging disease by living life to the full. Retrieved from Mail Online website: http://www.dailymail.co.uk/health/article-1286481/Progeria-schoolgirl-Hayley-Okines-body-96-year-old-refuses-let-rapid-aging-disease-win.html
Oz, D. (n.d.). How rare is progeria? Retrieved from share care website: http://www.sharecare.com/question/how-rare-is-progeria
(n.d.). What is progeria? Retrieved from Hayley's page website: http://hayleyspage.com/
Nordqvist, C. (2012, September 26). What is progeria? Retrieved from Medical News Today website: http://www.medicalnewstoday.com/articles/146746.php
(n.d.). Progeria 101/ faq. Retrieved from Progeria Research Foundation website: http://www.progeriaresearch.org/progeria_101.html
(2012, April 24). Britain's oldest 20-year-old man has the body of a 160-year-old due to rare condition. Retrieved from Mail Online website: http://www.dailymail.co.uk/health/article-2134367/Progeria-Dean-Andrews-20-body-160-year-old-rare-condition.html People are so cruel! When searching up Adalia Rose I was horrified when I saw what popped up when I typed in "Adalia Rose is" things popped up like;
Adalia Rose is ugly.
Adalia Rose is responsible for 9/11.
Adalia Rose is dead.
and Adalia Rose is not beautiful. Families of children suffering with progeria still treat their child as if they were normal. They all face the fear of knowing that their child can die any day. They were all told that they would lose thier child by their mid teens, and now they take the fact that thier child can basically die any day and put a smile on thier face. Why should they worry about tomorrow when every day is a gift? What The Families Go Through Daily. Survivor's stories. Adalia Rose Adalia Rose has developed quite a celebrity status while battling this disease. She has been all over facebook and youtube. She has her "haters" and her supporters all over the internet world.
She is six years old and already she has to deal with all these rude people saying things like she's ugly, saying that she's the reason 9/11 happened. Yet she still has a smile on her face and she stays strong through everything. Dean Andrews Dean Andrews is Europe's oldest sufferer of progeria. He is 20 years old living in the body of a 160 year old man. Last year Dean was the second oldest survivor of progeria. During his life Dean has learned to drive, been engaged, got four tattoos and once he even started a mechanics course at college. He got kicked out when he couldn't get his 4ft 1in body over the cars' bonnet.
When Dean was diagnosed with progeria when he was seven, and his mother, Dawn Thomas, was told that he would not live past his early teens. The conditon was so poorly documented back then that most doctors never even heard of it.
According to Dean's mom when he was about six months he was alot smaller than he should have been. Even though he was still wearing clothes for 0-3 month old babies, the health visitors not to worry. Project by: Michaela L. Coens Children with progeria are given the choice weather or not they go to school. If they go to school they probably do have to deal with bullies and the difficulties. But they get friends that support them and stand up for them. Schooling with Progeria.