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Caregivers - LoneStar Blood Cancer Conference
Transcript of Caregivers - LoneStar Blood Cancer Conference
Increased with shift toward cancer as chronic
Requires mastery of skills...
Defined: "Perception of distress related to caregiving tasks"
The "Have To's"
Inversely related to QOL
Risk Factors for
Lack of Education
"What's a little walking pneumonia, compared to cancer?
Primary forms of distress
"Welcome to CancerLand!"
Laura Howe-Martin, PhD
Moncrief Cancer Institute
UT Southwestern Medical Center
"Yes, I have a pain on my leg. I wanted to see the doctor but I thought that my wife needed to be treated first and then I'd see the doctor later... it's not really serious."
Increased morbidity (including CAD)
Decline in personal health status
From Northouse, L., et al. (2012). Psychosocial care for family caregivers of patients with cancer. Journal of Clinical Oncology, 30 (11), 1227-1234.
Ongoing case manager
Up to date information
Social services resources
Perception of burden
Coping style (active vs. avoidant)
Less family/social support
Annual well-woman exam?
Contrast with Patients
12-24 months post-dx!
QOL not associated
Longer survival post-palli
Depression & suicide risk
Find MODIFIABLE risk factors
Sleep Hygiene 101
Education (Early Stage)
Coping Style/Skills (Later Stage)
Specific protective factors
So What Can We Do?
Beattie, S., & Lebel, S. The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: A comprehensive literature review. Psycho-Oncology, 20, 1137-1150.
Girgis, A., Lambert, S., & Lecathelinais, C., (2011). The supportive care needs survey for partners and caregivers of cancer survivors: Development and psychometric evaluation. Psycho-Oncology, 20(4), 387-393.
Kim, Y., et al. (2011). Individual and dyadic relations between spiritual well-being and quality of life among cancer survivors and their spousal caregivers. Psycho-Oncology, 20, 762-770.
Lichtenthal, W. G., et al. (2011). Underutilization of mental heatlh services among bereaved caregivers with prolonged grief disorder. Psychiatric Services, 62(10), 1225-1229.
Northouse, L, et al. (2012). Psychosocial care for family caregivers of patients with cancer. Journal of Clinical Oncology, 30(11), 1227-1234.
Papastavrou, E., Charalambous, A., & Tsangari, H. (2009). Exploring the other side of cancer care: The informal caregiver. European Journal of Oncology Nursing, 13, 128-136.
Porter, L.S., et al. (2011). Caregiver-assisted coping skills training for lung cancer: Results of a randomized clinical trial. Journal of Pain and Symptom Management, 41(1), 1-13.
Song, J., et al. (2012). Quality of life and mental health in the bereaved family members of patients with terminal cancer. Psycho-Oncology, 21, 1158-1166.
Turkoglu, N., & Kilic, D. (2012). Effects of care burdens of caregivers of cancer patients on their quality of life. Asian Pacific Journal of Cancer Prevention, 13, 4141-4145.
Wadwha, D., et al. (2013). Quality of life and mental health in caregivers of outpatients with advanced cancer. Psycho-Oncology, 22, 403-410.