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Family carers Ind Fnd 22.2.16 FINAL

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Carmel Laragy

on 2 May 2016

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Transcript of Family carers Ind Fnd 22.2.16 FINAL

Family carers - member with psychosocial disability
Evidence - impact of individual funding
Risks and concerns

System not focused on carers’ needs
Families not informed / prepared for NDIS planning meetings
Some planners unaware of carers' needs
Money insufficient to meet needs & families left to ‘pick up the tab’
Administrative overload if support not provided
NDIS plans hard to understand & implement

'Flow on' benefits for family carers

“If he’s happy, I’m happy.
It rubs off, doesn’t it?” (Larkin 2015)

Key question

What are the impacts on family carers of people with a psychosocial disability when individualised funding provides support?

Search broadened to
i) Impact on carers of people with all types of disability and aged?
ii) Outcomes for people with disability when ‘flow-on’ effect for family carers

Number of references reviewed - 91
What is individual funding?
Government funding allocated in person's name after assessment and planning
UK has assessment & allocated funds for carers
Designed to maximise choice & flexibility and give people more control over their lives
Person buys services & supports open market
Nationally & internationally different names & designs
i) who hold funds
ii) if purchase from open market
iii) if recruit, employ & manage staff
iv) level of responsibility expected
v) information & support provided
vi) adequacy of funds
In Canada & USA over 40 years & Europe 30 years

System design determines outcomes

Access to information
Support provided need to match level of responsibility taken
Adequate funds
Workforce, services and activities available

Individual goals
Negative outcomes for family carers

Administrative overload
manage taxation and insurance requirements
find services and activities
acquit financial accounts
'Fill the gap' with money and support if funding allocation not sufficient
Positive outcomes for family carers

More choice, control & flexibility with services and supports
More respite when family member is purposefully occupied
Less emotional, physical & financial strain
More satisfied with their life
Less worried about family member
Liked being less dependent on service providers
Some liked selecting & employing support workers
compensated for previously unpaid work
income welcome
improved status
created tensions in the relationship
less appreciated

Benefits for family member with psychosocial disability

Improved mental health & less time in hospital
Better quality of life
Less time in criminal justice settings
No adverse outcomes when given appropriate support
New housing opportunities
Less stress
More confidence, greater social participation & jobs

What helps family carers?

Information 'is power'
Peer support to gain information and confidence
Education about assessment processes, planning meetings & guidelines
Skilled planners / coordinators with empowering attitudes
Support to match level of administrative responsibility
Supports and services to purchase
Key question
Individual funding
Risks & concerns
System design
Impact on family carers
Employing family members
What helps family carers?
Ties between family members
Full transcript