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Family carers Ind Fnd 22.2.16 FINAL
Transcript of Family carers Ind Fnd 22.2.16 FINAL
Evidence - impact of individual funding
Risks and concerns
System not focused on carers’ needs
Families not informed / prepared for NDIS planning meetings
Some planners unaware of carers' needs
Money insufficient to meet needs & families left to ‘pick up the tab’
Administrative overload if support not provided
NDIS plans hard to understand & implement
'Flow on' benefits for family carers
“If he’s happy, I’m happy.
It rubs off, doesn’t it?” (Larkin 2015)
What are the impacts on family carers of people with a psychosocial disability when individualised funding provides support?
Search broadened to
i) Impact on carers of people with all types of disability and aged?
ii) Outcomes for people with disability when ‘flow-on’ effect for family carers
Number of references reviewed - 91
What is individual funding?
Government funding allocated in person's name after assessment and planning
UK has assessment & allocated funds for carers
Designed to maximise choice & flexibility and give people more control over their lives
Person buys services & supports open market
Nationally & internationally different names & designs
i) who hold funds
ii) if purchase from open market
iii) if recruit, employ & manage staff
iv) level of responsibility expected
v) information & support provided
vi) adequacy of funds
In Canada & USA over 40 years & Europe 30 years
System design determines outcomes
Access to information
Support provided need to match level of responsibility taken
Workforce, services and activities available
Negative outcomes for family carers
manage taxation and insurance requirements
find services and activities
acquit financial accounts
'Fill the gap' with money and support if funding allocation not sufficient
Positive outcomes for family carers
More choice, control & flexibility with services and supports
More respite when family member is purposefully occupied
Less emotional, physical & financial strain
More satisfied with their life
Less worried about family member
Liked being less dependent on service providers
Some liked selecting & employing support workers
compensated for previously unpaid work
created tensions in the relationship
Benefits for family member with psychosocial disability
Improved mental health & less time in hospital
Better quality of life
Less time in criminal justice settings
No adverse outcomes when given appropriate support
New housing opportunities
More confidence, greater social participation & jobs
What helps family carers?
Information 'is power'
Peer support to gain information and confidence
Education about assessment processes, planning meetings & guidelines
Skilled planners / coordinators with empowering attitudes
Support to match level of administrative responsibility
Supports and services to purchase
Risks & concerns
Impact on family carers
Employing family members
What helps family carers?
Ties between family members