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A new intervention
Transcript of A new intervention
of people with dementia Method Background and rationale Data-analysis and outcomes Datacollection Population Study design
In the present study a
phenomenological design fits
better than a grounded theory Research question Research objectives Problem definition Open, axial and selective coding In-depth semi-structured interviews Topic list - the emotional impact
- the social impact
- caring and coping strategies
- support needs “Could you tell me how your relationship with your … has changed since you know that your … suffers dementia??” The topics are based on the following themes: Target population: Informal caregivers of people
with dementia in the Netherlands Sample: -15-20 informal caregivers until saturation is reached.
-Search for excesses Grounded theory no (strong) theoretical framework
reconstructing the internal logic of the behavior, thoughts, feelings and meaning Because (1): How do primary informal caregivers of home living people with dementia experience loneliness? Because:
The experience of the primary informal caregiver plays an important role.
Little is known about loneliness in informal caregivers. Utrecht Model (1)
Two stages of the model are elaborated:
Building blocks: problem analysis 230,000 people with dementia in 2012 to more than 500,000 in 2050 (1).
300,000 Informal caregivers (2).
98% experience various problems in the care, including feelings of loneliness (1).
Emotional vs. Social loneliness
Limited understanding of how informal caregivers manage the feeling of loneliness. Informal caregivers experiences feelings of loneliness.
The nature of the problem of loneliness in informal caregivers of people with dementia is actually unclear. An intervention to prevent loneliness experienced by the informal caregiver of the patient with dementia. Final goal: 1. Van Meijel B, Gamel C, Van Swieten-Duijfjes B, Grypdonck MHF. The development of evidence-based nursing interventions: methodological considerations. Journal of Advanced Nursing 2004;48(1):84-92. Verbal presentation:
Development of Prezi: Luanne Vos & Marjanne Zielman
Luanne Vos & Elke Mathijssen
Mieke Krijgsman & Sofia Klaassen
Elke Mathijssen, Sofia Klaassen & Mieke Krijgsman
Marjanne Zielman 1. Peeters J, Werkman W, Francke AL. Dementiemonitor mantelzorg, NIVEL. 2012.
2. Oudijk D, Boer Ad, Woittiez I, Timmermans J, Klerk Md. In the spotlight: informal care in the Netherlands. The Hague: Netherlands Institute for Social Research SCP 2010. Quality aspects:
Building up rapport Constant comparative method (2) Quality aspects:
Researcher does transcriptions
The use of a standard method
The researchers work in a team
The use of external audits Qualitative research Open, axial en selective coding (1) 25 January 2013 1. Creswell JW. Qualitative inquiry and research design. 2th ed. California: Sage Publications; 2007.
2. Boeije H. Analysis in qualitative research. 1th ed. California: Sage Publications; 2010. Outcome: Experience of loneliness 1. Kars MC. Parenting and palliative care in Paediatric oncology. Julius Center for Health Sciences and Primary Care, University Medical Centre Utrecht. 2012. Obtain insight into loneliness