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Teens and Young adults with Cancer

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Alexandra Tuckness

on 29 November 2016

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Transcript of Teens and Young adults with Cancer

Coping Strategies
Charities
Stupid Cancer
Imerman Angels
Teenage Cancer Trust
Teen Cancer America

Hospital Environment
Psychosocial Challenges:
Adolescent and Young Adults with Cancer
Social Life
Distraught about the disruption of school and missing out on social activities
Emotional about their future
Frustration that their illness has imposed physical limitations on their newly-found independence
In need of unwavering support from friends, family members, and school contacts

Confusion about the meaning of life and the long-term effects cancer may have on their identity
Inclined to make light of their cancer, joking about their illness in order to distract from the gravity of the situation
Pressured to stay upbeat and positive in order to prevent family members from worrying

Resources
Stupid Cancer :: The Voice of Young Adult Cancer. (n.d.). Retrieved November 21, 2016, from http://stupidcancer.org/
What Makes Their Experience Unique?
Developing an identity

Having a positive body image

Becoming independent

Attaining intimacy

Making life decisions

Maintaining normalcy

Belpame, N. )., Beeckman, D. )., Van Hecke, A. )., Verhaeghe, S. )., Decoene, E. )., Quaghebeur, M. )., & Kars, M. ). (2016). "the AYA director": A synthesizing concept to understand psychosocial experiences of adolescents and young adults with cancer. Cancer Nursing, 39(4), 292-302.
Being exposed to other patients death
The importance of AYA's needs to facilitate the healing process, which are different from children
Falling in the cracks between children and adults
Stupid Cancer:
Founded in 2007 by Matthew Zachary.
Largest U.S. based charity that comprehensively addresses young adult cancer.
Supports a global network of patients, survivors, caregivers, providers and advocates.
Mission
: To empower those affected by young adult cancer.
Vision
: No survivor is alone.
Imerman Angels:
Created on the belief that no one should have to face cancer alone and without the necessary support.
Unique matching process, that partners anyone seeking cancer support with someone just like you called a "Mentor Angel".
Mission
: To provide personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers.
Core Values
: Mission first, people first; Create awareness and inspiration; Fundraising as mission focused; Create community; Build alliances with everyone; Stay relaxed, laid back and have fun!; Stay innovative and always improve; Be humble.
Teenage Cancer Trust
Teen and young adult cancer program out of UK.
Set out to provide a teenage environment.
Grown to become a global leader in the field of young cancer care.
28 hospitals across UK.
Funds specialist nurses and youth support co-ordinators.
Education Team travels the country.
Hair 4 U.
Teen Cancer America:
Following the footsteps of Teenage Cancer Trust.
Designed to help hospitals and healthcare professionals bridge the gap between pediatric and adult oncology care.
Partnered with 11 hospitals throughout U.S.
Build teen friendly environments and support dedicated research to improve outcomes and survival rates.
OUR STORY & MISSION - Imerman Angels. (n.d.). http://imermanangels.org/about-us-2/
ABOUT US - Teenage Cancer Trust. (n.d.). http://imermanangels.org/about-us-2/
WHO WE ARE - Teen Cancer America. (n.d.). https://www.teencanceramerica.org/who-we-are/
Physical Consequences & Limitations:
Alterations in appearance
Disability
Loss of fertility
Delays in development of autonomy
Educational/Professional repercussions
Disruptions in their social lives
Perceptions:
Unfamiliar with life threatening matters
Sudden and completely unexpected
Some over whelmed, others felt numb
Not concerned about the impact on their future
Not significantly noticeable
Thinking from temporary point of view
Challenges:
Felt limited
Physical alterations were an emotional challenge
Altered appearance made cancer apparent
Temporary or permanent loss of independence
Being isolated from others made their illness more apparent and harder to overcome
Major Challenges
: Physical consequences, loss of independence, and feelings of loneliness/being alone.
Focus:
Individual battles
Did not want to lose themselves in the experience
Self-centeredness
Experience made them more selfish
Avoid idea of life-limiting disease
Positive attitude
Importance of humor
The need of positive people around
Hold onto normal life
Held to what they were used to and what they valued the most
Friends are essential
Primary
: Positive attitude, having life get back to normal ASAP and being in control.
Expectations:
Network
:
To be treated as normal
To direct the support they receive
Healthcare Professionals
:
Recognized as an individual
Support in maintaining normalcy and experience some flexibility
To have a voice
Interventions Overview
Start with building a strong, honest relationship
Advocate for the adolescent
Scrap booking
Other art activities
Social media/ blog
Teen room/ group
Building a Strong Relationship
Having a strong relationship is important in order to make the teen trust you. If the teen does not trust you, they will not be willing and open to try the ideas you offer.
Toys and play is very common among younger children. However, with older kids, bringing in a magazine or video game can help start conversation.
Talk to them about things that are relevant to their life.
Advocate for the Adolescent

Encourage parents and other medical staff to direct questions and information to the teen themselves
This will help them to feel empowered and in control
By validating their feelings, they may feel more comfortable speaking up if they have a question or concern for their medical team
Can be limited by what the parent wants the child to know.
Scrap Booking
Example from the movie "My Sister's Keeper"
Creative outlet to help them share their story and feelings
Helps them process what they are going through
Can be kept private for only them to see or can be shared
Memories can be preserved
-Friends
-Family
-Hospital room
-Medical team
Turning Old Treatment Masks into Art
Social Media/Blog

A form of social and emotional support.
Helps them process what they are going through
Connecting with people who are going through similar situations
A place to share how they have gotten through their journey, they can feel empowered by helping others
Teen Rooms/Groups
Encourage the patients to get out of their rooms and socialize
Help bring a sense of normalcy to their lives
Help establish a group of friends that the teen can go to throughout their stay in the hospital that can relate to their situation
Chou, W. S., & Moskowitz, M. (2016). Social media use in adolescent and young adult (AYA) cancer survivors. Current Opinion In Psychology, 9(Social media and applications to health behavior), 88-91. doi:10.1016/j.copsyc.2016.01.003

For Teens. (2016). http://www.acco.org/for-teens/


Thorton, S(n.d.). Child Life Mommy. Retrieved November21,2016, from http://childlifemommy.com/category/child-life-tips/psycosocial-emotional/
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