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Cystic Fibrosis is a genetic disease that affects the CFTR gene in the human body Blocked small intestine at birth Symptoms Cystic Fibrosis is a terminal illness. People with CF,
die at a young age. Long Term Affects When where you diagnosed with Cystic Fibrosis Vanessa Morrison CFTR is a protein that is responsible for the hydration of mucus in the body. This mutation prevents the correct hydration of the mucus in the lungs, without the hydration the mucus becomes very thick and sticky The thick mucus builds up in the lungs in pools, blocking both the overall capacity in the lungs and the small airways that lead into them. People with CF have a constant cough, which is the body's way of trying to get rid of the thick Mucus. The thick Mucus in the lungs is also a breeding ground for bacteria in the lungs, which can lead to lung infections. Aside from CF affecting the lungs it also affects the digestive system. The thick mucus blocks the small openings in the pancreatic duct, which is how
the pancreas releases enzymes and insulin to the body.
Diarrhea Not growing or gaining weight Breathing problems Lung infections A cough that does not go away wheezing Getting tired easily while playing I was 13 months old when my mother found out I had cystic Fibrosis
I was brought to OHSU in Portland,where I was diagnosed with CF. I started
treatments at 18 months old. My life expectancy was only 7 years old.
I'm glad to say I will be celebrating my 27th birthday on April 13th! How do you cope with Cystic Fibrosis? Having Cystic Fibrosis is the most terrifying thing in my life
not because I am going to die young, I am afraid to never achieve all the things that life has in store for me. I know that modern science has been able to come along way but it still does not ease the pain of watching my friends die. I have lost 11 friends. I guess you could say I have not been able to learn how to cope, but instead I live life in the in the present. It’s just a waste to live dreaming about the future or the past. Does it inspire you to live life to the fullest? What are your dreams and goals? I’m all about living my life and having fun no matter what. I try new things weather dangerous or gross because I realize you only get once in a lifetime for anything and I want to experience everything that life can offer. I don’t worry about the little things in life I just worry about who I can make smile or who's life I can touch. I want to make an impact on others so that way I can help spread awareness of this horrific disease. As of today we get not a single dollar from the Government. All our research is funded by fundraisers and donations. What are you're daily struggles? With such a complex and mandatory treatment plan there are many struggles in managing it. One of the biggest is simply remembering to take everything and when to take it. On average I have to take over 126 pills a day at various times and with meals and snacks. Difficult thing to manage is the physical and breathing treatments.there are days I just don’t feel like doing my treatments because I'm too weak or sick certain days. I can’t work either because Cystic Fibrosis Is such a hardship to endure every day. Every 1-3 months I get admitted into the hospital for 2 weeks at a time, I practically live in the hospital. What has Cystic Fibrosis challenged you with? A simple cold could turn into pneumonia and put me in the hospital.I want to be normal and have a normal life. I want to wake up early and go to work or school. I want to get married and start a family. I want to do everything everyone else can without having to plan ahead. I want to go out in public without making people getting disgusted with me because I’m coughing because I can’t breathe. I would love to go walk around without people asking if I’m anorexic because I’m so skinny. I was forced to grow up a lot faster than other kids my age because I had to learn responsibility about my disease and how to care for myself. I'm tired of my doctors giving me expiration dates it seems like I’ve grown up staring death in the face and every time he has come for me I was strong enough to fight him back and win.
What is you're favorite food? I don’t really think this is a fair question for myself to answer. Because food is my passion I love cooking all foods and eating all foods. If I had to choose than I would choose the food type that never ends which is an everlasting buffet. Pretty much do you watch man vs. food ever? now imagine someone who is 5'5" 103lbs eating like that all day long everyday of her life!
This is me and my Aunt Vanessa, she has struggled daily with CF.
Not many people know about, or understand how terrifying Cystic
Fibrosis is. I am so proud of how strong she is!