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Carers - sociological and psychological aspects

Presentation for Foundation degree

Anna Byrom

on 25 November 2011

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Transcript of Carers - sociological and psychological aspects

Carers - who helps? Young carers What's the impact? Aims and outcomes: Who needs care? Today we will focus on 3 groups: Young carers Male carers parenting a disabled child What is caring? Parenting disabled children What is disability? Medical model Social model some stats 56% of carers are living in lone parent families
1 in 10 young carers is caring for more than one person
overall girls are more involved in caring tasks, especially as they get older
half the young carers are caring for 10 hours per week
16% for over 20 hours per week
36% of carers have been caring for 2 yrs, 44% 3-5yrs, 18% 6-10yrs and 3% for over 10 yrs. two thirds of young carers provide domestic help in the home
48% provide general and nursing type-care
82% provide emotional support and supervision
18% provide intimate personal care
11% also provide child care
(the incidence of emotional support has increased dramatically since 1997 Disabled adults may be eligible for support services. However, Morris (2003) suggests that disabled parents have unequal access to health and other mainstream services for themselves and their children. References:
Dearden P and Becker S (2004) Young Carers in the UK: the 2004 report, London, Carers UK.
Morris J (2003) The right support: Report of the task force for supporting disabled adults in their parenting role, York, Joseph Rowntree Foundation.
“Young carers are children and young persons
under 18 who provide, or intend to provide,
care, assistance or support to another family
member. They carry out, often on a regular basis,
significant or substantial caring tasks and assume
a level of responsibility, which would usually be
associated with an adult. The person receiving
care is often a parent but can be a sibling,
grandparent or other relative who is disabled,
has some chronic illness, mental health problem
or other condition connected with a need for
care, support or supervision.” injury caused by lifting or dressing someone
becoming ill themselves
developing behavioural difficulties due to emotional problems
missing school or problems completing homework
social isolation from children their own age or from family members
feeling of being different - getting bullied
lack of play time, sport or leisure activities
problems moving in to adulthood, finding work, their own home or establishing relationships
What can we do to help?
ask questions
find a way of enabling your service to identify that a young person is a carer
make appointments more flexible
have information about young carers and potential sources of support
raise awareness of young carers
consider adding caring role on to details The impact on young carers (Young carers report 2004) Definition of a young carer: What kind of care? Household chores Personal nursing care Emotional support other Childcare Intimate care washing cooking cleaning ironing monitoring and meeting the emotional needs of a person listening reassuring comforting paying bills hospital appts acting as a translator helping to care for younger siblings escorting to school giving medications changing dressings assisting with mobility washing dressing assisting with toilet requirements “Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.” (Leo F. Buscaglia 1924-1998) A carer is someone who looks after and supports a friend relative or neighbour who could not manage without their help. This could be due to age, physical or mental illness or disability. 42% of carers are men Male carers what are the issues? men are less likely to seek practical and financial support
caring is recognised socially as a female trait or activity support for carers life after caring “… In our view, it is society which disables physically impaired
people. Disability is something imposed on top of our impairments
by the way we are unnecessarily isolated and excluded from full
participation in society. Disabled people are therefore an
oppressed group in society. To understand this it is necessary to
grasp the distinction between the physical impairment and the
social situation, called ‘disability’, of people with such impairment.
Thus we define impairment as lacking all or part of a limb, or
having a defective limb, organism or mechanism of the body and
disability as the disadvantage or restriction of activity caused by a
contemporary social organisation which takes little or no account
of people who have physical impairments and thus excludes them from participation in the mainstream of social activities" (Oliver 1996 p22) parents' desired outcomes focused on maintaining or enhancing their personal identity, their physical and emotional well-being, and the skill and knowledge base. They also expressed a desire for a better balance between their caring and parenting roles. In addition to individual outcomes, parents described family-level outcomes including maintaining family life and ensuring the positive adjustment of siblings. Parents wanted sufficient practical and financial resources to meet the needs of their disabled child and the rest of their family. Parents also wanted to feel confident about the services they were using and to know that professionals were working in partnership with them. "Parenting a disabled child goes beyond ordinary parenting" The impact: Lost identity
relationship difficulties
physical illness (lifting etc)
sleep problems
accepting child's diagnosis ongoing emotional task
dealing with services - stressful
neglecting other siblings
difficulty to maintain a sense of family
financial difficulties

(Beresford et al (2007) Remember disabled children are not a homogenous group. The needs and priorities of children with different conditions and impairments are likely to differ

They could include:
children with complex health care needs
children who do not communicate using speech
children with autistic spectrum disorders
children with degenerative conditions What parents want from services: Policy supports parents and children:
Every Child Matters
NSF for Children and young people What does this image say? in pairs, spend a few minutes defining disability how would you feel? is disability normal? We all need care, but some need more than others older people
disabled people
people who use mental health services
people with a learning disability
children and families
young people Aims Learning outcomes To improve awareness and care provision for all carers within the United Kingdom At the end of the session students will:
be able to describe the nature of 'caring'
have knowledge of who requires care
demonstrate understanding of carers and the social, physical and psychological impacts upon individuals and families Carers The physical, social and psychological impacts References What are your thoughts? “transpersonal caring...is a moral ideal, a means of
communication and intersubjective contact through the coparticipation of one’s entire
self”(Watson, 1989, p. 234). caring is associated with ideologies of nursing, of feminine nurture. However, some early writings on the philosophy of caring , implied it was only nurses that could fully care! 1. Formation of a humanistic-altruistic system of values;
2. Nurturing of faith and hope;
3. Cultivation of sensitivity to one’s self and others;
4. Development of a helping-trusting, human caring relationship;
5. Promotion and acceptance of the expression of positive and negative feelings;
6. Use of creative problem-solving processes;
7. Promotion of transpersonal teaching-learning;
8. Provision of a supportive, protective, or corrective mental, physical, sociocultural,
and spiritual environment;
9. Assistance with gratification of human needs;
10. Allowance for existential-phenomenological-spiritual forces (Watson, 1989, pp.
226227). Watson's 10 Carative factors: authenticity of being; conscience; commitment; presence; compassion; empathy and empowerment How would you feel if you suddenly had to start 'caring' for someone, on top of your studies? www.nhs.uk/carersdirect
Some resources and websites the Children Act assessment looks at the needs of disabled children and their families as whole Carers (Equal opportunities) Act 2004 says that all local councils must inform carers of their right to an assessment so they can be offered an assessment once social services are aware! Research carried out from Saul Becker the National lead for Young Carers Research, in 2008 indicates that:
nationally 4% -10% of children and young people in the UK have some caring responsibilities.
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