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End of Life Care LGBT

Behavioral Research

erin fisher

on 29 October 2011

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Transcript of End of Life Care LGBT

End-of-Life Care and Supporting Social Networks
for Middle Old Adults and Very Old Adults
in the Lesbian and Gay Community

Erin Fisher
Georgia State University Overview Introduction of Topic
Literature Review Purpose of Study Research Methods Aging Population
Social Networks
Emotional & Physical Support
End-of-Life Care Financial, Emotional & Medical Literature Review Focus Points Social Support Networks Discrimination in Healthcare Marginalized & Disenfranchised Social Networks “A flexible but often strong and supportive network of friends, lovers and even family of origin which provides the framework for mutual care, responsibility, and commitment for many lesbians and gay men.” (Almack, Seymour, & Bellamy, 2010). Chosen Family 80% of care given to elderly population is by the elder’s family
(McFarland and Sanders, 2003). Aging LGB adults rely more heavily on friends and partners for support
End-of-Life Care Most in LGB community do not
address long term care or
health issues with partners or
social network (Heapy, 2009). Many legal implications of being Gay or Lesbian Lesbians and Gay men “face systematic biases in health insurance and in public entitlements that limit their access to not only better healthcare, but to any coverage
and services at all” (Smolinski & Colon, 2006). Pallative Care focus on pain relief and pain
management Pallative care: PAS Physician Assisted
Suicide (PAS):
a physician helping a patient take his or her life, upon the patient’s request
Vast differences between homosexuals & heterosexuals views on these topics Fear of discrimination in the healthcare setting prevents aging LGB adults from discussing pertinent information to healthcare providers Automatic legal rights Social Security survivor benefits
Family health insurance
Joint tax returns Need to make medical decisions
for the future Lesbian, Gay, & Bisexual
(LGB) Community Marginalized
Disenfranchised “Sexual orientation is one of the most likely areas for inequality and discrimination” (Almack et al. 2010). "a loss that is not or cannot be openly acknowledged,
publicly mourned or socially supported” (Doka, 1989). Disenfranchised Grief: Lack of awareness or insensitivity of a
healthcare professional Purpose of Study Most research on health and social care needs of LGB elders focuses on “young old and middle-class, white, affluent, and urban populations” (Almack et al. 2010)
More research is necessary
Difficulty reaching LGB persons to participate in research Difficulty obtaining a representative sample because there is little demographic information
Results will not be generalizable Participants Recruited from 3 national gay and lesbian
planned retirement communities The Palms of Manasota
Palmetto, FL Rainbow Vision
Santa Fe, NM Triangle Square
Hollywood, CA Survey Adaptation of 2001
study by Stein & Bonuck "healthcare in the gay and lesbian community, with a focus on care in the event of a serious illness" I N T R O D U C T I O N Discrimination & Legal Issues Future Research Research Questions How do gay and lesbian persons over the age of 65 perceive end-of-life issues and healthcare? What do the social networks of gay and lesbian
persons over the age of 65 look like and
who is included? Heterosexual seniors depend
more on

(Mansini and Barrett, 2003) family members The issue of long-term care and
end-of-life was often not discussed becuase
anxieties (Heapy, 2009) "I don't think about it becuase it's
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