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Programme grant outline

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emma wilkinson

on 17 October 2018

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Transcript of Programme grant outline

Informed by reviews of the literature
People with South Asian background experience diabetes earlier than White Europeans, have a greater risk of complications and faster progression

Care providers and patients will benefit from better informed & targeted approach to intervention

Focus on access; comorbidities & stratification; and cultural competency is a way of achieving this

These mechanisms can have an impact on reducing inequalities in diabetes and kidney related outcomes including end stage kidney failure

Including older people with a South Asian background in future research in these areas is a way of filling gaps in the evidence, improving access and reducing inequality
Review 1 UoB's Diabetes in ageing and diverse populations
Title: How can we reduce inequalities in the care of older people living and dying with diabetes related kidney disease?
Co applicants: Ken Farrington, Gurch Randhawa, Edwina Brown, Christina Faull?, Maria Da Silva Gane, Magi Sque, John Stoves, Tahira Mir, James Burton, Bobbie Farsides?, KRUK, Muhammad Waqar, Sonia Dalkin?, Andrew Booth? & Emma Wilkinson
Cultural competency
Comorbidity & stratification
Care planning
Application to themed call: Complex health and care needs in older people Deadlines: 28/03/18 (NIHR PDG) 04/04/18 (NIHR PG)
How can lay support workers improve access to end of life kidney care using therapeutic interviews?
How does cognitive impairment affect access to end of life kidney care?
Review 2 KRUK's Scoping review of inequalities in outcomes of ESKD in minority groups
Informed & underpinned by Patient and Public Involvement
What are the key mechanisms for intervention to improve access to end of life care for ethnic minority groups with ESKD in the UK?
Research Question 3:
Research Question 2:
Research Question 4:
Programme Grant
What are patient experiences of access to end of life care from formal and informal carer perspectives (as proxies) and from deceased patient records. How can learning from this help to reduce inequalities in future.
Ethical framework
Lead partners: NJ (KRUK), SD (Northumbria), AB (Sheffield) & EW (UoB)
Lead partners: CF (Leicester, Loros), TM (Bradford) & UoB
Lead partners: EB (Imperial, West London) & UoB
Lead partners: KF (Luton, Hertfordshire), EB (West London, Imperial), JS (Bradford), JB (Leicester) & UoB
Lead partners: MS (Wolverhampton), MDG (Luton, Hertfordshire), TM (Bradford), CF (Leicester)
WP 1
Research Question 1:
Participatory realist evaluation of inequalities in access to end of life kidney care.
Education & training
Culturally sensitive anticipatory grief & bereavement care
Lead partners: FM / RG (Kings College) & UoB
Collaborating partners: BF (Sussex), Healthcare Chaplaincy
A programme of culturally intelligent research & evaluation applying bilingual therapeutic research interviews, culturally sensitive tools (for cognitive impairment), retrospective analysis of quality of end of life care from formal and informal carer perspectives with peer education & support and an ethical framework to understand and improve access focusing on South Asian & White British people with end stage kidney disease in the UK
WP 2
WP 3
WP 4
WP 5
WP 6
Culturally sensitive tools for cognitive impairment
Patient benefit within 3-5 years
On-line training resource / reusable learning object for professionals & lay support workers to provide culturally competent eol kidney care
Trained lay workers supporting eol kidney care at participating sites
Quality audit tool to support & monitor culturally competent care planning with people with ESKD
Evaluation & improvement
Public & policy engagement and dissemination of findings to increase awareness of eol kidney care
Guidance for kidney care teams including ethical framework for care planning and for working in a culturally sensitive way with kidney patients who have with cognitive impairment and their families
Collaborating partners: CRUSE?
WP 7
Year 0
Year 3
Year 5
Action research
Action research
Action research
Gaps identified
Feasibility & pilot study of bilingual lay support at end of life
Culturally sensitive therapeutic interviews
Qualitative interviews
*(Planning ahead by looking back bid)
Systematic review
*(Marie Curie bid)
Interviews with patients, formal & informal carers
*(Outline 3D bid)
*(elements of EPIC & Aage Ki Soche bids)
Ethical framework for culturally competent research at end of life
Ethical framework for culturally competent kidney care at end of life
Training professionals & lay workers using vignettes
Development of RLOs
Faith groups input
Potential timescale:
Submit application via CCF
Programme development grant deadline 28/03/18


Programme grant deadline 04/04/18
Start grant
(and 4 monthly through the year)
Full transcript