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OCDD Semi Annual Report

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Ryley Newport

on 29 July 2015

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Transcript of OCDD Semi Annual Report

Current State Plan Goals
The Oregon Council on Developmental Disabilities (OCDD) has the following priorities in our current state plan:

Education
Employment
Community Inclusion
Health, Safety and Quality of Life
Community Inclusion Goal
Employment Goal
There is an increase in the number of people with IDD who achieve competitive employment.




Employment Activities
We published 10 videos that show how Oregonians with IDD are successfully employed in their communities!

Education Goal
Increase the number of students with IDD prepared for and qualified to pursue continuing education and/or competitive employment.


OCDD Semi Annual Report
October 1, 2014 - March 30, 2015

There is an increase in the number of individuals with IDD who experience full community participation, exercise choice in their lives, and contribute to their communities.

We published the
Planning My Way to Work
transition guide on our website: www.ocdd.org.

We presented the guide at the OAVSNP transition conference in February, 2015.

We distributed over 4,000 copies to families and professionals!

The Family Networks gave 48 trainings on education and the IEP; 429 people attended!
Education Activities
Community Inclusion activities
We held our annual DD Awareness Event on March 7, 2015; about 150 people attended!

Awards went to Jim Wrigley, Margaret Theisen and Trisha Baxter for their significant contributions to the DD community.

Oregon Self-Advocacy Coalition
The Oregon Self-Advocacy Coalition (OSAC) is an initiative funded by the Council. OSAC is a statewide advocacy organization made up of 18 local groups.

Their mission is to bring people together to speak with one voice about issues important to people with disabilities.

Emily Holmes presented it at the OAVSNP conference in Hood River during February 2015.

70 teachers, people with disabilities, family members and staff from VR, CDDPs and brokerages attended.
OSAC Capacity Building
Self-advocacy group, Emerging Leaders Northwest (ELNW), developed a curriculum for transition age students.
Emily Holmes, ELNW Chair and Ryley Newport

OSAC submitted extensive waiver and rule comments to DHS during Fall 2014.

OSAC testified in front of legislative committees on:
Improving employment services
Community housing
Ending subminimum wage
Passing the ABLE Act

Advocacy & Systems Change
Representative Boone,
Rachel Simpson, Ross Ryan
and Ryley Newport

Oregon Consortium of Family Networks (OFCN)
OCFN Capacity Building


Collectively, the Networks developed relationships with 222 new community partners and gained 516 new volunteers.

CODSN received a $20,000 grant to support their mission.

Employment Activities
Health Safety &
Quality of Life Goal
There is an increase in the number of people with IDD who experience health, safety and quality of life consistent with the values expressed in the DD Act and by the Administration on Intellectual and Developmental Disabilities (AIDD).
HSQL Activities
We collaborated with the IDD Coalition to develop legislative priorities:

Check out our Employment Series Introduction Video!
More available on our YouTube page!
HSQL Activities
We organized advocacy and legislative testimony to restore the Fairview Trust (SB 616, 617 & 671).

Ross Ryan, Justin Connolly and Ruth Morris in front of the House Human Services Committee

HSQL Activities
We organized testimony in support of SB 777 to implement the ABLE Act in Oregon.

We worked with the Oregon Law Center to stop 60,000 people from being illegally terminated from the Oregon Health Plan.

HSQL Activities
Council staff organized testimony in support of SB 555 to end subminimum wage in Oregon.
Subminimum Wage Testimony
Oregon Alliance for Early Intervention (AEI)
AEI is a grassroots organization that connects families and professionals to information, resources and advocacy opportunities within the Early Intervention and Early Childhood Special Education (EI/ECSE) community.

AEI engages parents and professionals in advocacy for EI/ECSE services. This period they:

Published five montly newsletters that reached over 1,016 people.

Created an online presence with a website and Facebook page (AEI has 352 likes!).

Organized a legislative advocacy training for families in Salem to support EI/ECSE services during the 2015 legislative session.

AEI Accomplishments
Education Activities
We developed a Person-Centered Planning (PCP) training project for educators. (This initiative is currently unfunded.)

If funded, teachers will facilitate PCPs with each other’s students specifically to improve transition outcomes for students with disabilities.

This project is intended to be replicated; potential for dollars leveraged.

Community Inclusion Activities
Working with stakeholders, we developed a proposal to restore the Fairview Trust and use the funds creatively to increase access to community housing.

We also prepared legislative advocacy and testimony to increase access to affordable and accessible housing in Oregon communities.
OSAC 2014 Annual Meeting
OSAC board members elected new officers.

Over 40 members attended advocacy workshops on healthcare, employment and transportation.

Speakers included Seattle advocate Eric Matthes and leaders from the OHA Ombudsman and Medicaid office, ODDS, DHS Employment First and VR.

Ryley Newport became the Advocacy Coordinator in December, 2014.

Advocacy & Systems Change
OSAC represented the interests of people with IDD on the:
Multnomah County Employment First team
Medicaid Advisory Committee
Executive Order Employment Policy Committee
Oregon Health Authority OmbudsAdvisory Committee
DHS Budget Stakeholder Group
One ISP Work Group
Department of Labor Work Group

We developed a fact sheet to promote the Networks.

110 members engaged in systems advocacy.

889 people were trained
on a variety of topics.
OCFN is an initiative funded by the Department of Human Services and implemented by OCDD staff.

OCFN is an association of family networks committed to supporting families to:
Use services effectively;
Develop natural support in local communities; and
Have a vision for a whole life for themselves and their children.

Advocacy & Systems Change
OCFN Evaluation Data
When asked if involvement with the Family Network made a difference in their lives:

74% said the Family Network has made a difference in the life of their child with a disability.

78% feel the Family Network has made a difference in the life of the mom or primary female caregiver.

43% feel the Family Network has made a difference in the life of the dad or primary male caregiver.

When families were asked what they felt able to do over the past year: 

3 in 4 (about 75%) said they identified and connected with resources for their child and family.

More than half (over 50%) said they developed a vision for their child's future.

1 in 3 (about 33%) said they became involved in systems change or pursued change in their own community.

OCFN Evaluation Data
When asked about vision for their child with disability, families responded “My child will…”


Be safe and healthy (95%)

Be connected to family (93%)

Have friends (92%)

Work at a paying job (82%)

Live independently (75%)

Earn a high school diploma (72%)

Have romantic relationships (71%)

Volunteer in his/her community (66%)

Receive post-secondary training or education after high school (62%)
Employment Activities
We developed an initiative to promote competitive employment outcomes using peer-to-peer education. (This initiative is currently unfunded.)

The initiative aims to...
Train 12 people with IDD to be peer educators

Provide local workshops to support youth and adults with IDD to develop and implement competitive employment goals

Provide support and expertise to local agencies

Engage families and local agencies to support participants in working towards their competitive employment goals

Fairview Trust Testimony
ABLE Act Testimony
OSAC board at 2014 annual meeting
Vice Chair, Sherri Osburn
3,274 people received 12 weekly GO! Bulletins and the 2014 K Plan GO! Bulletin (16% click rate).

326 people participated in legislative advocacy training and visited their legislators during eight DD Advocacy Days at the Capitol.

Over 200 people participated in this year's photo rally!
Inclusive Childcare Program
ICCP helps families access typical childcare for their children with disabilities and administers financial childcare supplements to eligible families.



Increased awareness of ICCP services through new visual displays, a new brochure, and monthly training with DHS and employment related day care (EDRC) staff.

Doubled the number of families enrolled in the EDRC supplement program in 6 months.

Lobbied the State to raise the family eligibility threshold - increasing access to childcare supplements for Oregon families of children with disabilities.
ICCP Accomplishments
1. Restore the Fairview Trust;

2. Raise direct support professional wages;

3. Continue funding Employment First; and

4. Fund the CDDP and brokerage workload model at 95%.
GO! Advocacy Days Results!
OSAC participated in a press release about the Able Act and made it in the Oregonian!
Advocacy for the Able Act
Full transcript