Your Vote Can Save Lives
Need your vote for Kansas City's 30 people under 30. The winning person/ charity gets awarded the grand prize!
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Your Vote Can Save Lives
According to the National Institutes of Health (NIH), there are approximately 7,000 different rare diseases affecting approximately 15 million children in the United States. This statistic does not take into account the number of children affected with rare disease in the Europe Union or around the world.
According to the FDA, over the past 25 years and since the passing of the Orphan Drug Act in 1983, we’ve had approximately 350 new drugs brought to market for all 7000 rare disorders despite the incentives by the federal government.
Think about this for a moment. 7,000 rare conditions. 15 million rare children in the United States. And only 350 new drugs for rare disease in 25 years? These are mind blowing statistics by any measure.
Kansas City's Top 30 Under 30 is an event featuring thirty of KC's young professionals who have managed to start their own business, raise money for charity,or they are at the top of their industry. These individuals have stepped out to make an impact in their communities.
VOTE Online.
Niemann-Pick Type C Disease is FATAL with no cure! Brisan and Parker are our two eldest son's who captures the meaning of this horrible disease they sometimes refer to as the "CHILDHOOD ALZHIEMER'S".
We need your VOTE!
Visit: http://bit.ly/VOTE_To_SAVE
a $10 donation is required
It ALL goes to Charity!
for: Michael Stults or Niemann-Pick Children's Fund
NPC is the inability for the cell to metabolize choleserol.
Consequently it stores these fatty lipids in the Brain, Liver, Spleen, and Bone Marrow causing a domino affect of neurological problems that eventually leads to their premature death.
They Only Have A Childhood To Live A Lifetime
Thank you for Voting! We will be able to do something very special!
Visit our site
www.NPCFund.org
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