CFHA 2009
Social Media, Web 2.0, and Collaborative Health
Gonzalo Bacigalupe, EdD, MPH
Associate Professor
Family Therapy Program
University de Massachusetts Boston
gonzalo.bacigalupe@umb.edu 
Abstract:
Technology developments are moving us towards the predominance of cloud computing, collaborative exchange, and social networking over the use of technology as just storage, multitasking, and faster ways of carrying on business as usual. These developments stimulate new ways of collecting data, developing messages, and sharing information. Notions of expertise, control, hierarchy, acquisition of knowledge, locality, identity, privacy, etc. are all in flux as populations worldwide adopt social media. This workshop explores some of these technologies and how they may reshape collaborative health practices. Web 2.0 is a term describing new collaborative Internet applications. A core characteristic is the greater user participation in developing and managing content. Web 2.0 technologies are already changing the communication landscape, social marketing, as well as core ways in which public health practices are conducted. We explore some of the challenges at working with various levels of expertise and comfortableness with these technologies among digital natives and digital immigrants. How we approach research, how the federal, state, and local institutions inform the public, deploy prevention campaigns, are evolving rapidly as web 2.0 technologies continue to develop and adopted widely. Social networking tools are providing new venues to communicate and obtain feedback on the part of individual patients, families, and communities. Empowering families and communities to shape clinical practices and policies is not anymore limited to specific geographical areas or direct personal contact. In some communities, patients are accessing clinicians using these tools and demanding clinicians and administrators to adopt them. There are also experiences of bottom up health policy implementations that have been possible because of the intensive use of the networking possibilities offered by Web2.0 technologies. These technology developments require a cultural change among organizations, a change for which attendees of this conference should lead since we are convinced of the need for integration, transparency, collaboration, and strength-based approaches.

Health 2.0Practices

EMR

Clinic Website
Biographical Information
Prevention
Interaction
Insurance Info
Reminders
Triage Chat

Communication in between visits

Twittering and Facebook
Appointment reminders
Medication reminders
Epidemic Alerts 

Education at the waiting room 
Video
PPT

Patients' Communities
Support Groups via Web-conferencing
Policy Advocacy
Patient empowerment (self-help)

Social Marketing










Collaborative Health
Context Foci
Individual in context
Family focus
Relational

Integrative
Interdisciplinary
              Shared Records
Integrated Care
               No split of Mental-Physical
Patient-Centered Medical Home
Evidence-Based
             Clinical
             Research 

Health Foci
Prevention
Primary Care
Family Care
Quality & Safety
Enhanced Access



Health System Barriers

Lack of Access
Quality of Care
Non-integrated care 
Health disparities 
               Intersectionality

Collaborative Care Research Network (CCRN) 
How can we combine mental health, substance use and physical health services to produce better health outcomes for all patients.
http://www.aafp.org/online/en/home/clinical/research/natnet/ccrn.html
Web2.0 Tools

Mobile Phones

Email

Blogs

Webconferencing

Syndication: RSS
Google Reader

Podcasts
Patients tell stories
Physicians talk/dialogue

Videocasts
Flipvideo
UTube
Vimeo

Social networking
Facebook
Twitter
Friendfeed

Paul Levy's Blog
RSS stands for Really Simple Syndication, an easy way to stay updated on news and information that are important to you and reduce the time it takes to browse or search for new information on Web sites. RSS feeds provide updated news headlines, blog posts or selected Web site content.
Recent evidence indicates increased access to and use of Internet

 and non-healthcare-related email by older patients. Because email adoption could potentially reduce some of the disparities faced by this age group, there is a need to understand factors determining older patients’ enthusiasm to use email to communicate with their physicians. Electronic mail (email) represents a means of communication that, coupled with face-to-face communication, could enhance quality of care for older patients. © Hardeep Singh, Sarah A Fox, Nancy J Petersen, Anila Shethia, Richard L Street Jr. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 16.06.2009.   
Web 2.0 is a term describing new collaborative Internet applications. The primary difference from the original World Wide Web is greater user participation in developing and managing content, which changes the nature and value of the information. 

A modern version of the 'Country Doctor' photo essay originally done by W. Eugene Smith.Photos Taken in Kremmling, Co. Dr. John Wisneski © 2009 Ariel Fried 
Is this what we see as the future?
http://www.youtube.com/watch?v=6F1u36Y-qlE
Study: 3 out of 4 U.S. Nurses Recommend Health Websites to Patients

Manhattan Research Releases New Taking the Pulse® U.S. Nurses Study Giving Insight to How Nurses Use Technology – Webinar August 26

NEW YORK, NY – August 24, 2009 – Approximately three out of four U.S. nurses recommend health websites to patients, according to the inaugural Taking the Pulse® Nurses v9.0 study from healthcare and pharmaceutical market research company Manhattan Research. The market research and advisory service focuses on which technologies nurses have adopted, how they are currently using them, and how they plan to use them in the future. 

The study found that nurses are very savvy when it comes to using technology for health. The average nurse spends eight hours per week online for professional purposes, which is just as much time as physicians, and almost all of them use the Internet in between patient consultations. Nurses are also proactive in researching medical product information specifically online – over eighty percent have visited a pharma, biotech, or device company website in the past year. Merck, AstraZeneca, Pfizer, Eli Lilly, and Sanofi-Aventis have the most-visited corporate sites by nurses.
COLLAB
RATIVE HEALTH
S
CIAL MEDIA
WEB 2.
0
Social Determinants
http://labcast.media.mit.edu/podcastmedia/LabCAST043_nmm_iPod-640x480.m4v
The Social Media Medicine
The New Media Medicine research group believes that it’s time for a power shift in health care. As a society, we have dramatically underestimated the power of ordinary people to transform the system, to take care of their own health, to help develop therapies, and to help solve massive public health problems. We are working on technologies that will enable radical new collaborations between doctors, patients and communities.
http://www.channels.com/feeds/show/12194/LabCAST
About 4 out of 10 U.S. physicians report to communicate with patients via email, instant messaging or secure messaging http://bit.ly/4G9XJ